1. Expert Q&A: Living well as a carer - Thurs 29 August, 3-4pm

    As a carer for a person living with dementia, the needs of the person you care for will often come before your own. You may experience a range of difficult emotions and you may not have the time to do all the things you need to do. Caring can have a big impact on both your mental and physical health, as well as your overall wellbeing.

    Angelo, our Knowledge Officer (Wellbeing) is our expert on this topic. He will be here to answer your questions on Thursday 29 August between 3-4pm.

    You can either post questions >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll answer as many as we can on the day.

CHC funding- after the panel meeting

Discussion in 'I care for a person with dementia' started by Toddleo, Feb 23, 2016.

  1. Toddleo

    Toddleo Registered User

    Oct 7, 2015
    412
    Mum "narrowly missed out" on CHC funding , and the panel meeting was held before christmas.

    My understanding was that we should heve been sent copies of the Decision support tool, and notes appertaining to the decision, but these have never materialised.

    I have sent two letters to the hospital discharge team manager, and subsequently sent an email with copies of all correspondence to the patient advice liaison service (PALS), no reply from them either so far.....

    Am I missing something do you think? Is my understanding wrong - what shall I do next -suggestions?:(
     
  2. tigerlady

    tigerlady Registered User

    Nov 29, 2015
    427
    They do take a long time to reply and if you add in the Christmas factor it would take even longer. Do you have a contact number you can ring?
     
  3. dottyd

    dottyd Registered User

    Jan 22, 2011
    1,066
    n.e.
    On what grounds do you know that she narrowly missed out.

    It seems a weird thing to say. Have you watched the video. The Dst should not be used mechanistic ally.

    It's used to collate information.

    Be sure they are not acting unlawfully. When your mums needs are beyond what is deemed to be social care then by default you are eligible for CHC funding.

    A well managed need is still a need. This is from guidance from 2007 I believe. Guidance is used to explain the law and the law ( 1946) states that nhs is free at point of need.

    If social care tries to take up your mum, they could be acting unlawfully.


    I would definitely appeal and yes you should get a copy of the Dst.
     
  4. Clueless2

    Clueless2 Registered User

    May 14, 2015
    34
    Is it possible to have a link posted for the video you mention dottyyd, I'm not sure where to find it, thanks.
     
  5. nitram

    nitram Registered User

    Apr 6, 2011
    18,830
    Male
    North Manchester
  6. Saffie

    Saffie Registered User

    Mar 26, 2011
    22,501
    Female
    Near Southampton
    You do not necessarily become eligible for CHC funding by default simply because your needs are beyond what is deemed social care I am afraid. If that were so, many more people would be granted it as many sufferers of dementia also complex have medical problems.
    This is giving false hope and expectations to people. The need has to match certain criteria which are categorised by the DST after the preliminary checklist suggests that these criteria might be met, though it doesn't necessarily mean fhey will automatically do so.
    The DST provides evidence to satisfy the various categories

    Toddleo, you should certainly receive a copy of the completed DST and appeal if you think that their conclusion does not match with the evidence provided. Good luck with this. It's a nightmare to go through!
     
  7. Toddleo

    Toddleo Registered User

    Oct 7, 2015
    412
    Thank for your reply. I do not actually think that mum should have qualified for CHC funding - I am surprised to be told that she only narrowly missed out to be honest. yes, she has mid stage alzheimers, but has improved leaps and bounds in the other areas, where she originally would have scored highly (falls, skin issues, etc,,)
    It was really the procedure that I was worried about, because undoubtedly she will get worse as she progresses on her alzheimer's journey, and I want to be prepared for that stage.
    Is it written down anywhere that you should be sent copies of all paperwork including the DST after the panel hearing? and, who should I be complaining to?
     
  8. Saffie

    Saffie Registered User

    Mar 26, 2011
    22,501
    Female
    Near Southampton
    "Following every assessment or review you should be sent a written decision as to whether you are entitled to NHS continuing healthcare together with reasons for the decision."

    The above words are taken from the following publication.

    https://www.gov.uk/government/uploa.../NHS_CHC_Public_Information_Leaflet_Final.pdf

    You would have to contact the CHC assessment team of the CCG of your area.
    if you do not have their address, I would try to phone them.
     
  9. Toddleo

    Toddleo Registered User

    Oct 7, 2015
    412
    perfect Saffie, many thanks
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.