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Fantastic news Brizzle, such a relief for you after all your hard work. I'm so glad you didn't just lie down and let them win. It really shouldn't be like this to get the care people deserve. Well done and enjoy your de-stress. xWell it’s been a roller coaster ride over the last few months and today has been no exception but Mum has finally been granted CHC due to her level of needs.
Earlier today I was told mum would only qualify for FNC and then 9 hours later I got another call from another CCG lady who had overruled the earlier decision following an in depth review of the medical notes contained during the assessment.
It has been a stressful few months fighting dear mum’s corner, and there have been a number of procedural ambiguities along the way where I have had to get mum a reassessment and continue to speak up where I thought mistakes were being made but finally the CCG have come to the right and just decision.
I am under no illusion that should mum’s needs have reduced by the 3 month review then the funding could be withdrawn immediately but if that happens and I feel the decision is unsound then of course I will fight mum’s case as always. Conversely I will not challenge any decision should I think it to be true and fair.
In the meantime I have 3 months to recharge my batteries de stress and dare I say it chill for a while !
The thing to do now, is to continue to record everything that happens with regards to your mothers behaviour and health. Try to get the care home staff to keep recording any incidents, no matter how minor or serious and ask to see the records to make sure they are. Ask them every time you go in, if anything happened and then ask if they recorded it and make a note of it yourself, for your own records.Yes indeed Dave63, I had seen that stipulation regarding the review procedure that should essentially be about seeing a person’s needs were being taken care of rather than their re eligibility. However having now received the completed DST and reasoning behind the final decision I am not too confident that will happen at the 3 month review.
They have made a point of saying mums “eligibility “ was only border line and that if her behaviour issues have reduced this “ May effect eligibility going forward “. In fact the general tone of the letter makes me think that mum will be going through a “retrial “ at the review rather than “ reviewing the package of care” as a primary objective.
The DST itself was full of errors and incorrect procedure once again, but I was expecting that. Given that mum has at least for now been granted CHC I will put any complaints regarding that on the “back burner” and only use it should a formal complaint against the CCG or an appeal for CHC be required. I think you have six months to do either of these things so no point in rocking the boat just yet imo.
Brizzle, you are very much allowed to de-stress after everything you have been through and make other things a priority for a while. Take care. xMany thanks Elle for putting me firmly back on “ones toes” regarding this. I have indeed had a talk with the senior care home staff regarding mums challenging behaviour about 2 weeks or so ago and emphasised the importance of keeping regular and accurate records to which they assured me they were doing. However since then due to other personal life and family challenges unconnected to poor mum I have been less focused on what might be ahead,
You are absolutely correct in what you say and on my next visit this week I will ask to see the nursing homes behavioural logs for mum and continue to do so respectfully every 2 weeks until her next review date.
Yes I did realise the importance of the nursing home to keep accurate records hence my talk with them quite recently. However as mentioned due to other every day stresses and strains and the relief of finally getting mum CHC my mind has for the most part temporarily gone off the ball and may have remained that way in the short term until mums funding review . Not any more though Elle ...thanks to your experience, prompting and most valued input !