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Caring for my 95yr Old Mom w/Alz, Vascular Dementia, Lewy Body, Sundowners & Stage 4 Kidney Disease

CareGiver2Mom

New member
Jun 23, 2022
1
0
USA
I am new here and I have been caring for my Mom(95yrs old)for over a year now who has Alz,Vascular Dementia, Lewy Body, Sundowners and Stage 4 Kidney Disease and now on Hospice care at home even though she has some mobility.She was diagnosed about 2 years ago but we think she has had it at least 7-8 years due to the things I was seeing and hearing her do.
I am the baby of 5 and the only one caring for my Mom because the others have no relationship with us except for my 1 older brother that lives in Col. Too long of a story to discuss but a very dysfunctional family and I myself am a Heart patient and have other health issues.

Before my Mom turned 95 on May 30th she was in the hospital for a pooping issues that wouldn't stop so the ER admitted her, they discovered she had Colitis, Stage 4 Kidney Disease and she was pretty dehydrated so after 2 days in the hospital the Dr came to me and said he thought she needed to be on Hospice care even though she is still mobile some and uses a walker. She still eats really good but doesn't get but about 16oz of liquids a day because she refuses to drink due to incontinence. Her walking is not very good now even with a metal walker and she has fallen quite a few times. Her demeanor is kind of nasty before the disease and all the issues make it 1000 times worse.

So she's been on home Hospice now for a month and the nurse comes out once a week and an aide comes to bathe her as well. Hospice has prescribed Lorazepam and Trazadone but both meds at full strength cause her to fall and I can't have her having a broken bone so we have only been giving her 1/2 of each plus a piece of a 1/2 to try and get her built up to full dose. She is very restless at night and is up/down scratching her head and hallucinating, talking to her imaginary friends etc. She see's people in her room on a daily basis and now when you ask her what her age is she replies 54 which is my age. Yesterday I noticed that both sides of her face near her temple is sunken in pretty bad and the nurse said it is because she is wasting away. She has gone from 130 pounds to 119 in a year and we weighed her today and the scale showed 100 so I am hoping thats not right cause thats a huge loss in 1 month. The last few days she has had an upset stomach and wouldn't eat breakfast but ate dinner despite her stomach still bothering her but I am really worried about the severe dehydration and her lack of drinking in fluids. Anyway, I apologize for this being so long, I am just taking it day by day and trying to read and understand all the changes these nasty diseases take.



 

Izzy

Volunteer Moderator
Aug 31, 2003
67,280
0
71
Dundee
Welcome to the forum.

I’m sorry to read about your mum’s problems. It’s good that you found this forum. You’ll find lots of support and understanding here.
 

Grannie G

Volunteer Moderator
Apr 3, 2006
76,342
0
Kent
Hello @CareGiver2Mom

Your mum has been through so much, at her age there must be a limit to what a body and mind can take. It's tough on you to have to witness this and be unable to help or make things better for her.

There seems to always be one in the family who is prepared to take responsibility for the care of a parent and it seems to have been down to you.

I hope you are able to look after yourself.
 

GillP

Registered User
Aug 11, 2021
1,735
0
So sorry to read of your situation. This must be hard to deal with on your own. Try to find support and take care.
 

T1000

Registered User
Feb 3, 2022
130
0
@CareGiver2Mom so sorry to hear this, you are doing amazingly if she is still at home. I am sorry to hear you have no family support but hope you have a good medical team that you can rely on. That sounds like alit of weight loss yes but I suppose it's good she is eating a little but must worry you at this rate of progression. Big hug from an internet stranger.
 

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