Caring for mother

[Froth48]

Hello

we’ve been caring for my mum who’s 79 with late stage cancer and vascular dementia we’ve really struggled physically and emotionally in the last few months and had little to no support. I had no idea where to go or how to get the right help and advice so have felt very lost and confused. ...... it’s been very hard and frustrating...... I realise there are a lot of people in this situation.......been researching how best to help support and understand her.....

 

[Grannie G]

Hello @Froth48.

There is now a section for people caring for a person with dementia and cancer here;

Caring for a person with dementia and cancer

A place for people who are caring for someone who has both dementia and cancer. This space will provide a support network and a place to seek practical and emotional support, tailored information and Q&A events.

forum.alzheimers.org.uk

I hope you will be able to find some information and support which will help.

 

[Cat27]

Welcome to TP @Froth48
You‘ll you get lots of advice & support here so please keep posting.

 

[Grannie G]

There is a Thread here which may be more informative @Froth48

Managing cancer-related care or treatment for your loved one with dementia

When caring for a person with dementia and cancer it can be challenging to encourage them to co-operate with cancer-related care or treatment. We are sharing some experiences from carers of people with dementia and cancer. They spoke of difficulties including getting their loved one to...

forum.alzheimers.org.uk

 

[Shedrech]

hello @Froth48
a warm welcome to DTP
your mum is fortunate to have you looking after her ..... you are wise to looking for help to care for her

I wonder whether you've found Admiral Nurses, they are there to support carers ... there may not be one in your area but the have a Helpline

Admiral Nurse Dementia Helpline

Call or email our Dementia Helpline/Alzheimer's Helpline for reassuring and practical advice from our specialist team of Admiral Nurses.

www.dementiauk.org

and Macmillan Nurses

Macmillan Cancer Support | The UK's leading cancer care charity

Macmillan Cancer Support is here to listen, support you through treatment, and help with money. We fundraise so we can do whatever it takes.

www.macmillan.org.uk

have a chat with your GP as to whether Marie Curie nurses may be helpful as the GP has to make a referral to them

your mum is entitled to an assessment of her care needs by her Local Authority Adult Services, make it clear that you as carers need help to support your mum with both the dementia and cancer ... from that a care package will be suggested eg home care visits, respite, day care, an OT visit to suggest aids and adaptions

you may find some local services too

Find support near you

Use our dementia directory to find local support services for people with dementia and their carers in England, Wales and Northern Ireland.

www.alzheimers.org.uk

and our knowledgeable Support Line staff are there to chat about anything

Dementia Support Line

If you need dementia support, we’re here for you. Get personalised information, support and advice by calling us on 0333 150 3456.

www.alzheimers.org.uk

have a look around the forums here and keep posting, members will offer sympathy and useful suggestions