Care/Nursing Homes - Specific for Complex/Aggressive Behaviours

Abbey82

Registered User
Jun 12, 2018
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Does anyone else here have personal experience of a family member/relative/friend being in a Nursing/Care home that are 'specialists' in dealing with Complex/Aggressive behaviours ? In addition, the PWD also being mobile/fit ? Thanks.
 

Lynmax

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Nov 1, 2016
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Does anyone else here have personal experience of a family member/relative/friend being in a Nursing/Care home that are 'specialists' in dealing with Complex/Aggressive behaviours ? In addition, the PWD also being mobile/fit ? Thanks.

I'm sorry I can't help you but I will be very interested in any replies you get. My mum still lives alone with support from the family but there will come a time when that is not longer safe. I'm sure that we will be looking at the same kind of home as you mention, mum is still physically very fit but can be anxious and aggressive when confused. Rather then have to change placements as her behaviour progresses, I think we will be looking at what used to be called EMI care homes. I think the question I will be asking is what behaviours would the home not be able to cope with.

In sure someone will answer soon.
 

Abbey82

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Jun 12, 2018
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Thanks everyone. My Dad is very fit and mobile and currently in a Nursing home that deals with complex behaviours, however we are having issues with his aggression and agitation which is then further impacted by the fact he can lash out which they are struggling to deal with as he is so able! He's been sectioned twice, and I feel we are heading back to that. He's also hyper sensitive to medication and we are limited with what we can try.

I'm just looking at other homes that are more geared up for complex physical and mental behaviours and someone that is physically normal but mentally incapacitated!
 

jaymor

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Jul 14, 2006
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South Staffordshire
My husband went into a nursing home with 1:1 care. It was a nursing home that specialised in challenging behaviour. I really did worry but the worry was all for nothing. Yes there were incidents but the staff were highly trained and an incident would be dealt with and calm prevailed. Non of the residents were medicated for aggression. They got up when they wanted and went to bed when they wanted. It really was a home in the true sense of the word. It became my home too.

My husband was fully mobile for nearly three years of the four years he was there. He was never stopped from wandering around. He did not sleep either but again it was not a problem.

Because of the challenging behaviour staffing levels were high and several of the men had 1:1 care. It was most of the time a very quiet and calm place. I wouldn’t have wanted my husband anywhere else.
 

Abbey82

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Jun 12, 2018
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Thanks for the reply. Unfortunately my dad doesn’t go to bed and 1-1 just antagonises him further, although they are looking at 1-1 in the night time but for the carer purely to keep an eye and not intervene unless needed.

He goes into peoples rooms frequently and will not be compliant when asked to leave. He was also trained in martial arts and a marathon runner so it’s such a massive issue with his mobility, strength and fitness. He runs around the corridors frequently too. He’s on Loraz and Clonaz too but it hardly touches the sides.

I think he needs even more in terms of care, perhaps another nursing home that can deal with more physical complexities and aggression, not sure what else is out there at present. Early last year, we did a sweep of most homes locally and so many say they are dementia specialists and to be honest, it’s BS most of the time.

The home he is in now is good and the people too but I get worried about other people getting caught up in Dads activities and it’s already been an issue a couple of times
 

Helly68

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Mar 12, 2018
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I feel we are reaching this stage with my Mum. Shes late stage mixed dementia and bipolar disorder in a ch dementia unit. She is not able to move unaided but is remarkably strong and gets very agitated during personal care and medication giving. Four experienced staff are needed to manage her and we've tried a range of drugs without much effect.
At the moment the home have been brilliant but I wonder how long we can go on with staff getting cuts and bruises. She is council funded so in theory if she had to leave the council would need to find at least one place suitable for her. Not quite at this stage yet, but a nursing home has been suggested. I suspect a secure psychiatric unit where they can really monitor drugs might be better, apologies if this sounds overkill. She has been sectioned in the past.
A very worrying time. I have asked what happens to people with very challenging behaviour, but no one at the home seems to know
 

Lladro

Registered User
May 1, 2019
123
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Hi, really interested to read your post and the replies. My OH went into a home recently (last week) for a one week respite stay. This was traumatic to set up in the first place and then after three days, the home were telling me that they were unable to cope with her energy levels and that she needed one-to-one care, especially during the night time (I already knew this and made them aware of her relentless quest for something to do, before she was admitted). Anyway, they wanted to charge me an additional £300 per day on top of the £1000 weekly charge for another member of staff. I declined and brought her home early. The home itself, I believe is actually very good - clean, helpful and caring, although clearly they are not geared up for the extremely fit and demanding 70 year old that is my wife. The other residents seem to be stereo typical 80 plus who sleep a lot. My OH has more energy than me and I am 10 year's younger! Presently trying to find another establishment who will be able to cope with someone who is not "the norm". I need to find it quite quickly because I am on my knees. Any ideas warmly received...
 

White Rose

Registered User
Nov 4, 2018
679
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Hi, really interested to read your post and the replies. My OH went into a home recently (last week) for a one week respite stay. This was traumatic to set up in the first place and then after three days, the home were telling me that they were unable to cope with her energy levels and that she needed one-to-one care, especially during the night time (I already knew this and made them aware of her relentless quest for something to do, before she was admitted). Anyway, they wanted to charge me an additional £300 per day on top of the £1000 weekly charge for another member of staff. I declined and brought her home early. The home itself, I believe is actually very good - clean, helpful and caring, although clearly they are not geared up for the extremely fit and demanding 70 year old that is my wife. The other residents seem to be stereo typical 80 plus who sleep a lot. My OH has more energy than me and I am 10 year's younger! Presently trying to find another establishment who will be able to cope with someone who is not "the norm". I need to find it quite quickly because I am on my knees. Any ideas warmly received...
Oh dear @Lladro sorry to hear the respite didn't work out, so disappointing for you. Do you use the website carehome.co.uk to search homes in your area? I am now concerned for when my partner goes to his first respite in March as he is like your wife, always wanting something to do and he's also relatively fit and doesn't sleep much during the day. He can be quite difficult and uncooperative, the carer who comes two afternoons a week was even saying he doesn't know how I manage as my partner is so difficult!! The home I've lined up for him is very new so not full yet, it's £1300 per week
 

Abbey82

Registered User
Jun 12, 2018
95
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Sorry to hear both yours @Helly68 and @Lladro posts. There is so little available that is geared up to deal with fit and mobile people affected by complex dementia.

We are to the point that we are even considering buying a property and setting up our own Not for profit Care Home with people who we trust and know (Nurses, Carers, OT's) that can offer a small number of beds and respite/day care.

There is a such a different between older age more immobile dementia and those who are very fit/able and also those of a younger age (my Dad is 61)
 

Helly68

Registered User
Mar 12, 2018
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This is a very interesting, and indeed sad thread.

I think every case is individual. Mummy is often sleepy and seems her 83 years, until you try and get her to do something that she really doesn't want to do, like take medication. Then she becomes a remarkably strong screaming harridan who bites scratches and spits. I understand that she doesn't see things the way we do, but she does have some insight into her behaviour, as she says the "staff deserve it". To be clear, I really don't blame her, but I can also see the staff perspective too.
I think she is very angry and frustrated and sadly remembers previous secure psychiatric treatment as very traumatic and she is possibly re-living it.
Fortunately the home have a liaison team, for whom I thank god every day, with a psychiatric OT and psychiatrist who have been very helpful. They arent there all the time though and when they visit, she is lovely little old lady.
I suspect I will be asked to attend another meeting with the liaison team soon and am going to ask straight out what other options might be if she can't stay.
@Abbey82 that is really interesting, I wish you all the best.
 

Lladro

Registered User
May 1, 2019
123
0
Oh dear @Lladro sorry to hear the respite didn't work out, so disappointing for you. Do you use the website carehome.co.uk to search homes in your area? I am now concerned for when my partner goes to his first respite in March as he is like your wife, always wanting something to do and he's also relatively fit and doesn't sleep much during the day. He can be quite difficult and uncooperative, the carer who comes two afternoons a week was even saying he doesn't know how I manage as my partner is so difficult!! The home I've lined up for him is very new so not full yet, it's £1300 per week

Hi White Rose, thank you for the reply. I am currently awaiting information from other Care Homes which are "across the border" from our usual county, as we live just on the border of another area. I am hoping that this may prove more fruitful. But yes, when your partner goes to his first respite, I think you may experience the same difficulty, so check with them thoroughly beforehand. Best wishes
 

Lladro

Registered User
May 1, 2019
123
0
Sorry to hear both yours @Helly68 and @Lladro posts. There is so little available that is geared up to deal with fit and mobile people affected by complex dementia.

We are to the point that we are even considering buying a property and setting up our own Not for profit Care Home with people who we trust and know (Nurses, Carers, OT's) that can offer a small number of beds and respite/day care.

There is a such a different between older age more immobile dementia and those who are very fit/able and also those of a younger age (my Dad is 61)

Hi Abbey82, thank you for the reply and if you do venture into the murky world of Care Homes , setting up a "Care Home for the very active" - Then count my OH and I in as one of your first customers ! - Wherever in the country you are! Seriously, there is such a huge difference in care requirement between older age, less mobile and younger age, super-mobile...
 

White Rose

Registered User
Nov 4, 2018
679
0
Hi White Rose, thank you for the reply. I am currently awaiting information from other Care Homes which are "across the border" from our usual county, as we live just on the border of another area. I am hoping that this may prove more fruitful. But yes, when your partner goes to his first respite, I think you may experience the same difficulty, so check with them thoroughly beforehand. Best wishes
Good luck - hope you find somewhere suitable for your wife so you can have a proper break.
 

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