If your Mum's need is primarily a medical one
SHE IS ENTITLED TO CONTINUING CARE.
Having spent thousands of pounds of Solicitors I now have an advocate who deals with all of this for me.
I got to a stage where I've told them I don't have any money to pay top-ups or anything else, and that Mum's actual cash is well below what it should be (I'll probably be imprisoned for using this to help pay for her care). Mum's flat is still there - untouched, not rented out, not sold, just there!! They've not put a charge on it - I've resisted that.
Anyway, at present I'm paying absolutely nothing toward Mum's care, and neither is she - her state pension and personal pension is being banked and staying banked.
The powers that be have been advised that they should not make any changes to Mum's accommodation until they have proven that she is NOT entitled to continuing care.
It all frightens me s---less really, but it's the principle that I'm sticking out for. There is NO WAY ON THIS EARTH that Mum would be where she is IF she did not have (and has been diagnosed) with Alzheimers!
I really am not sure what to recommend to you because - in truth, this side of things is not doing me any good and sometimes I wonder if it's worth it - but Dad worked so flipping hard and he only ever wanted what he did have to be passed on to his children.
Hope I haven't opened something that you wish would stay closed!!
Best wishes
Ellie