Hi, I’m a new member and seeking some advice please. My mum was diagnosed with Lewy body dementia and Parkinson’s approximately 4 years ago. Since March 2020 she has been deteriorating. Social services and mental health team have stated she has no mental capacity anymore. She use to wander (but always came back) but the Parkinson’s has stopped her recently from going out as her mobility is poor. She has had 5 falls in 5 weeks with one stay in hospital. The other falls she has been found by me and was fine just needed to be pulled up. She does have problems with toileting and I find accidents around the house regularly. I’ve been getting conflicting advice from people. Some say she needs more care in the home (at the moment she gets two visits a day by carers- she doesn’t really like them and asks them to leave all the time) others say she needs to go in a care home.
I find myself constantly round at her house (I live 15mins away) because I am sick with worry and only get peace from that when I am at hers with her keeping an eye on what she does. She doesn’t know who I am anymore (this morning I’m the vicar’s husband!!!) but I do find myself hanging on to the good days. Professionals are stating care home, but the at home care provider is wanting to up the visits (I know they are biased). I have LPA for everything but I’m unsure what to do. She can dress herself, make cups of tea but doesn’t wash herself or cook anymore. Recently within the last 2 weeks her anxiety levels have increased. She doesn’t want me to leave when I pop round to see her as she is concerned about ‘the man’ coming to get her (she suffers with hallucinations too). She has rang the police too about her hallucinations and they have attended the property twice.
Any advice would be appreciated.
I find myself constantly round at her house (I live 15mins away) because I am sick with worry and only get peace from that when I am at hers with her keeping an eye on what she does. She doesn’t know who I am anymore (this morning I’m the vicar’s husband!!!) but I do find myself hanging on to the good days. Professionals are stating care home, but the at home care provider is wanting to up the visits (I know they are biased). I have LPA for everything but I’m unsure what to do. She can dress herself, make cups of tea but doesn’t wash herself or cook anymore. Recently within the last 2 weeks her anxiety levels have increased. She doesn’t want me to leave when I pop round to see her as she is concerned about ‘the man’ coming to get her (she suffers with hallucinations too). She has rang the police too about her hallucinations and they have attended the property twice.
Any advice would be appreciated.
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