Care home funding

[Casbow]

I think they have a sort of tick-box points system based on behaviour that makes them at risk.

Of course, maryjoan, thank you. Stay in this forum. Go to We're short, we're sharp but we're out there and scroll down about 3 posts to where I put the letter online.
Thank you!
Gx

Well done kindred. An extremely well written article that I hope gets read by the right people that might be in the right place to do something.
My mum was continent when she moved into her care home, but what swung it for her was that she was not eating or drinking, she was going out at night in her dressing gown and knocking on neighbours doors because she was lost and she had previously refused carers (I organised them and she wouldnt allow them in)

Yes Canary. David was assessed a year ago and we were told that he would be fully funded. but that they come back in 6 months to re -assess with someone from the funding place. They didn't come back until 8 months later and this time he didn't get enough points. His seizures were under control (medication). Now since then he has to be fed and helped with his drinks. His incontinence did not get him a lot of points. He could now go to a dementia care unit. But I asked to keep him in the nursing unit and they said yes. I hope that is until the end. If they move him he will be very angry and it could make him behave like he used to. Which was very challenging.x

 

[Baz22]

Look, this happens to so many of us. We get guilt tripped by the social workers and we have talk about the independence and privacy and freedom. We all know what the real agenda is. As for always being best to keep the individual in their own home, well, I have had a letter published in the times today about this. You can see it if you go to my posts in I have a partner with dementia. It really is time to speak out against this. All strength to you, putting someone you love in a care home is often the very best and most loving solution, as I know. Thank you for posting.

I read your letter in The Times yesterday and agreed with every word. I was pleased to see such a letter published. We need to keep banging on about this problem or it will get ignored. I have been astonished to find so many people experiencing the same problems as me. You initially assume "it must be just me". The NHS use Doublespeak and in a review meeting this week one of the Panel tried to tell me that just because a DOH social worker had rated my Mother has HIGH in a Needs category it did not mean it was HIGH for Continuing Health Care funding. Quite bizarre!

 

[kindred]

I read your letter in The Times yesterday and agreed with every word. I was pleased to see such a letter published. We need to keep banging on about this problem or it will get ignored. I have been astonished to find so many people experiencing the same problems as me. You initially assume "it must be just me". The NHS use Doublespeak and in a review meeting this week one of the Panel tried to tell me that just because a DOH social worker had rated my Mother has HIGH in a Needs category it did not mean it was HIGH for Continuing Health Care funding. Quite bizarre!

Oh thank you, good to hear from you. Yes, it is all double-speak and craziness. I was really thrilled that they published my letter, it is a first from the point of view of a hard hitting raising of the carer situation. I know they would be pleased to hear from others if you feel you could. 100 - 150 words. Thank you so much, this situation needs to be known.

 

[JoJo2821]

Surely not. People can go in care without being incontinent. Can't understand this. Other than different councils tend to do things a bit differently to others. But there is also an awful lot of shortages for homes. They seem to be full up in most places. Have to say that your mum going in the home will probably not stop the falls. Just hopefully reduce them. They can put alarm mats down for a start. If your mum had someone at home 24/7 she would be able to have an alarm pad. I hope you can get it sorted for your mum and of course for you.x

Yes I understand the falls will not stop in a care home but they do have night time care so that if she does fall someone will be on duty to assist her and ensure she isn't on the floor all night with an injury and no medical help. My other concern is not just the falls but her general wellbeing. Because of her reduced mobility and the fact that her flat is up 2 flights of stairs she can't get out much. She has very little in the way of socialisation or mental stimulation other than the carers and her children. I was impressed by one of the care homes which provide regular activities everyday, my mum responds very well to these types of things and enjoys them, having always been a person who enjoys socialising and being with others.