Expert Q&A: Rare dementias - Tues 3 March, 3-4pm
Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.
You can either post your question >here< or email them to us at firstname.lastname@example.org and we'll be happy to ask them on your behalf.
I have just signed the petition today. I agree with Ginny's comments, but hope this won't detract too much from the underlying argument. Let's do what we can to correct this unfair system. Only another 58 signatures needed. I hope this post gives this very worthwhile cause a well-deserved push to the finishing line!I've signed the petition and wholeheartedly support the campaign though I'm angered and dismayed by some of the comments on the petition page such as:
My dad is a self funder and paying a fortune he worked from 15 till retirement and paid all his taxes etc now he is still paying and receiving the same care as those who have never lifted a finger . This system is so unfair. It needs to be changed .
Of course the system's unfair and needs to be changed, but why denigrate those who, for whatever reason, lack the resources for self-funding? The idea that they 'never lifted a finger' is profoundly offensive towards people like my father who served in the war and paid taxes all his life, as is the suggestion in other comments that LA-supported residents pay nothing towards their fees when of course they pay all their income less 'spending money'. The only reason my father isn't self-funding is that my mother still lives in their house - and now has to claim pension credit because she's lost his income.
I appreciate that the petition itself is quite clear in simply wanting to end the indefensible discrepancy between the fees paid by self-funders and LAs; what a shame some of those commenting can't focus on this instead of making stupid and grossly unfair judgements on others.