I am struggling looking after my husband. Although our doctor, mental health nurse and carer support worker say it has been time for a while for him to go into care, the social worker is adamant he won't meet the criteria to pass the panel to get a care place. He now has reactive dysphasia, won't walk anywhere except to the bus for daycare or into the car. Beginning to get aggressive and understands v little of what is said to him. I had a burnout a few years back and have chronic arthritis. Spending my life just sitting when he is at the daycare. What on earth can l do? I feel l am sacrificing my life for his.
Hi, and welcome to TP. I'm sorry you're having such a lousy time, but your Social Worker isn't the one looking after him - you are. I used to nail a smile on my face, and try to appear stoic, but that got me absolutely nowhere.
I also had this feeling of misguided loyalty, because when I wrote down what I intended to say, it made my husband appear to be a monster, and it was only when I gave myself a stern talking to, and said to myself that the Alzheimer-free husband wasn't a monster, it was this new one, that I decided to tell the truth.
If you have to keep phoning, day after day, to get someone to take notice, then that's what you have to do. I always had "cry" in my voice, but tried to hide it, and then one day I just broke down, after years without a decent sleep, and for the first time, I was listened to. After that, I let the tears flow freely, every time I phoned.
There is
nobody who knows what each carer is going through, other than the carer themselves.