Can't abandon someone scared & Lonely, but I can't do this anymore

Snowdonia

Registered User
Sep 2, 2013
12
0
Northants
I sometimes wish I was a mind reader & could get some insight in to what my 'mother' is really thinking. One day she says one thing, the next she says the opposite, then she has no idea she has said anything. I don't know if she would prefer to be in a care home as she says one thing one minute and then something else. If she is too confused to know what she wants I don't know how to help as I am not close to her and she is not my mother is the normal sense and I did not know her as a child. She lives independently in sheltered housing and a warden knocks the door each morning to basically check she is still alive, but it is just a hullo/goodbye involvement! My mother asked me to look after her bank card a while ago & get her money when she needs it as she won't go near an ATM & used to continually lose her card. Recently she phoned me demanding to know why I am controlling her finances & saying she did not authorise it & demanding to know who did. I reassured her of the true situation & said she was welcome to have the card back etc. She was very unpleasant but appeared to have no memory of it the next day. She is once again adamant that she wants me to look after her card although in many ways I wish I did not have the responsibility, but there is no one else. She periodically asks about money & thinks she has none so I get her a statement so she can see it in black & white but she forgets in minutes She even asked me to help her claim an old age pension as she believed she had no income! She is in her late 80's.
I called round the other day with her prescription medication and she must have been making toast, but on answering the door, the toast was forgotten, although she said she had recently tried to eat some but had to spit it out due to breathing problems. I did not realise she had actually left toast under the grill & she did not even notice the smoke although by that point the grill pan was on fire due to the toast & oil in the pan. She wanted to throw water on it, despite it being oil that was in flames! The smoke alarm did not go off so I said I'd test it, but she would not let me and said last time 4 men came running. She has had two assessments and not been honest in either so help was deemed unnecessary. When she did have 6 weeks of carers coming in after a hospital visit, she would not let them make her any food, complained they came too early, took offence very easily and was generally uncooperative. She can sit and have general chit chat and I think people who see her only occasionally do not get a true picture yet the policy is to be very open about everything, and not say anything behind her back. When she was assessed and made out she can do all sorts of things that she cannot, the assessor then asked me if I had any concerns or wanted to add anything! How can I say the true picture with my mother listening and inevitably having apoplexy and saying I am lying and she is not? I find that the authorities are not always discreet if you try to tell them how things really are and they want the person with Alzheimers fully informed. This might seem ideal but it can also be very cruel to the sufferer & the carer. Even the Medical Centres are so impersonal now. My 'mother' never sees the same doctor twice. They have sent her a form to go and get a fasting blood test even though she is is no position to get to the venue. If they have even noticed that she has Alzheimers they will just assume that someone somewhere will sort it. I seem to be rambling now, but right now I just wish this would all go away.
 

CJinUSA

Registered User
Jan 20, 2014
1,122
0
eastern USA
Hello. You sound at your wits end, and I'm sorry. I hope someone comes on here really soon to help you sort out how to go about getting some assistance. I don't know your system well. I do know, from reading these forums, that sometimes getting the GP involved will help get things rolling with social services. Another method people use is to let things reach a pitch (the recent smoke inhalation might have served) so that the police need to be called. This has, some report, expedited the attention of social services. It sounds like your mother is relying on you for everything.

I have had my mother living with us since 2008, permanently since 2009. It's not the best situation for everyone, but we are managing. She wasn't the best mother to me (she was more motherly to my sisters), but she needs me now, and so there you have it. I don't want her in a home. In your situation, however, it sounds like a care home assessment or at least at home visits, are going to be essential. I hope it gets sorted for you. You are such a lovely person to be doing this for her, feeling as you do.

I hope someone comes along soon who knows your system and will have helpful suggestions for you. My heart goes out to you.
 

Worriedone

Registered User
Dec 10, 2011
6
0
Getting help

I sometimes wish I was a mind reader & could get some insight in to what my 'mother' is really thinking. One day she says one thing, the next she says the opposite, then she has no idea she has said anything. I don't know if she would prefer to be in a care home as she says one thing one minute and then something else. If she is too confused to know what she wants I don't know how to help as I am not close to her and she is not my mother is the normal sense and I did not know her as a child. She lives independently in sheltered housing and a warden knocks the door each morning to basically check she is still alive, but it is just a hullo/goodbye involvement! My mother asked me to look after her bank card a while ago & get her money when she needs it as she won't go near an ATM & used to continually lose her card. Recently she phoned me demanding to know why I am controlling her finances & saying she did not authorise it & demanding to know who did. I reassured her of the true situation & said she was welcome to have the card back etc. She was very unpleasant but appeared to have no memory of it the next day. She is once again adamant that she wants me to look after her card although in many ways I wish I did not have the responsibility, but there is no one else. She periodically asks about money & thinks she has none so I get her a statement so she can see it in black & white but she forgets in minutes She even asked me to help her claim an old age pension as she believed she had no income! She is in her late 80's.
I called round the other day with her prescription medication and she must have been making toast, but on answering the door, the toast was forgotten, although she said she had recently tried to eat some but had to spit it out due to breathing problems. I did not realise she had actually left toast under the grill & she did not even notice the smoke although by that point the grill pan was on fire due to the toast & oil in the pan. She wanted to throw water on it, despite it being oil that was in flames! The smoke alarm did not go off so I said I'd test it, but she would not let me and said last time 4 men came running. She has had two assessments and not been honest in either so help was deemed unnecessary. When she did have 6 weeks of carers coming in after a hospital visit, she would not let them make her any food, complained they came too early, took offence very easily and was generally uncooperative. She can sit and have general chit chat and I think people who see her only occasionally do not get a true picture yet the policy is to be very open about everything, and not say anything behind her back. When she was assessed and made out she can do all sorts of things that she cannot, the assessor then asked me if I had any concerns or wanted to add anything! How can I say the true picture with my mother listening and inevitably having apoplexy and saying I am lying and she is not? I find that the authorities are not always discreet if you try to tell them how things really are and they want the person with Alzheimers fully informed. This might seem ideal but it can also be very cruel to the sufferer & the carer. Even the Medical Centres are so impersonal now. My 'mother' never sees the same doctor twice. They have sent her a form to go and get a fasting blood test even though she is is no position to get to the venue. If they have even noticed that she has Alzheimers they will just assume that someone somewhere will sort it. I seem to be rambling now, but right now I just wish this would all go away.

Hi. I wrote to mum's GP and told him what I had seen mum doing. You need to get help and this is a starting point. Mum did not have blood tests and we saw a specialist in mental health quite quickly. Tell your mother's GP what you have written here. A team came to the house to assess her before we saw the specialist and she did badly on the tests which was the starting point. I do hope you manage to get this sorted quickly.
 

pamann

Registered User
Oct 28, 2013
2,635
0
Kent
Hello snowdonia you could write or email your memory clinic before you go for your appointment to let them know what problems you are having as l find it difficult telling them infront of your loved one my husband always says there is nothing wrong with me hope this is helpful for you. ♥♡♥

Sent from my GT-P5210 using Talking Point mobile app
 

cragmaid

Registered User
Oct 18, 2010
7,936
0
North East England
Hi, tell the warden that Mum's fire alarm does not seem to be working. Then ask the fire brigade to come, when you are there, to replace if necessary.
Make a note of all these things and the odd things and swings that Mum goes through and send it to her GP. Ask them to see her to start the diagnosis process and that she cannot be relied upon to come to appointments so you will be with her.
I gave up providing Mum with a full statement and just used to print out a balance, saying Day Date Balance in clear big bold print.

One thing I would say is that she ought to appoint an Attorney who can take over when she no longer can make safe decisions herself. ( google LPA for a start)

I don't know if she is receiving all the benefits she could be entitled to eg attendance allowance or perhaps pensions credit or council tax discount. Perhaps she has a Social Worker who could check these out or ask Age Concern.
 

CareGiver-1

Registered User
Aug 21, 2014
74
0
USA
.....right now I just wish this would all go away.

SNOWDONIA, we had the same problems with my MIL as you had with your mother. We moved my MIL (89) into our home in July. Every day has seen emotional/mental adjustments between my husband, myself, and his mother. We are her only family members. Prior to July, I took care of her in her apartment for 4 years. We simply do not have enough money to put her into a NH. Her personality is excessively self-centered and anti-social -- I am afraid a NH would kick her out if we could find one that was descent, & we could afford. I am exhausted all the time. Like a "mantra" I tell myself "Hang on, one day this will end."
 
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halojones

Registered User
May 7, 2014
438
0
hi snowdonia

I just wanted to say that you have found yourself in a very difficult situation and well done to you trying to cope.This illness makes it difficult enough,but if you don't have a good relationship with your mother then it is soo much more difficult.! And as for the social services etc, they all seem to be overwhelmed and don't understand how it really is for us , and will leave you to manage on your own if you let them!. If I was in your position I would be finding a c.h. for your mothers own safety and well being, !l. You must ask for help from the s.s. and don't let them fob you off.!Its outrageous how the s.s will let a clearly I'll and vulnerable person try and cope. I found my mother living in utter squalor and danger and the s.s. ticked the boxes that this was fine,that she chose to live like that.! My mum had always kept a nice home and was a professional home help!?!I I really hope you find the best solution to for you. Take care. xxx