Evening all,
Sam, I am so glad that you have - finally - had dealing with 'Care Professionals' who actually
do care!
My Mum's situation was complicated somewhat by being in a care home, so I could not just give her the meds I knew she needed
My MIL died at home, as a result of cancer primarily, and the NHS funded Marie Curie nurses to sleep over several times a week to give my SIL (who was living there) a break. I am really hoping this kind of thing will be provided for you too Sam.
It is utterly iniquitous that people with dementia should have to fund their own care, when those with other conditions don't
However, that should not be an issue now that your mum is now being looked after by the Palliative Care team. Things like the bed and recliner chair, pressure mattress etc should all be provided (loaned) FOC.
You are absolutely right to let your mum eat and drink as and when she wants. I think the saying is 'They are not dying because they are not taking food and drink; they are not taking food and drink because they are dying'
The body no longer needs the nutrition as organs are shutting down (which is how my Mum carried on for 19 days with no food or even a sip of water!).
I'm sorry, I know these words seem so harsh when they are written down like this (((hugs)))