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can i introduce myself continued

Discussion in 'Younger people with dementia and their carers' started by bel, Apr 27, 2006.

  1. bel

    bel Registered User

    Apr 26, 2006
    757
    coventry
    sorry i am not very good at this

    so i knew he had to stop work we were seeing our gp and a few referal specialist on and off for approx the last 10 years getting no where
    then as my husband was getting worse our gp said i think you should be rerrered to a dementia specialist
    to start with he said he thought it was Alzhiemers now 2 years on and loads of tests he is saying nothing is showing for Dementia and my husband is down as CMI i think this means some sort of memory impairment

    theres a lol more but stumbling across tp has made me feel i am not alone

    like one member said

    HE HAS DEMENTIA BUT I FEEL DEMENTED
    love bel x
     
  2. Amy

    Amy Registered User

    Jan 4, 2006
    3,453
    Hiya Bel,
    No need to apologise; I think the first post is the hardest one to make; then you find out that we're all pretty daft on here, make lots of mistakes, help one another when we can, annoy each other occasionally, but all are here because we love someone with memory problems, and we all feel we cope better by being able to share. So welcome, good to 'meet' you!
    Best wishes Amy
     
  3. Amy

    Amy Registered User

    Jan 4, 2006
    3,453
    Me again Bel
    you have got two threads going now, (don't worry, often happens), if you want to reply, click on the blue 'post reply' button at the bottom of a posting.

    Ken, you are a brilliant person and you have my utmost respect (Ken's talked to us on the other thread if you are wondering why I am saying this). I hope that if I ever develop an illness I can show your strength. Thank you for being here.
    Love Amy
     
  4. bel

    bel Registered User

    Apr 26, 2006
    757
    coventry
    bag of nerves

    hi Amy i was a bag of nerves doing my first go i am new to the computor
    plus tying to tell my story of over 12years is hard
    but i want to thank you and everyone for making me welcome

    YOU ARE SO RIGHT IT HELPS TO TALK

    LOVE BEL
     
  5. Amy

    Amy Registered User

    Jan 4, 2006
    3,453
    Hiya again Bel,
    So how is your husband doing? And what about you? My mum is in advanced stages of dementia, and in January we had to place her in a Nursing Home full time, because my dad could just not cope any longer. It is close to where he lives, so easy for visiting on a daily basis.
    That's a bit about me.
    Love Amy
     
  6. daisymaid

    daisymaid Registered User

    Mar 7, 2006
    15
    lincoln uk
    hi bel

    i know how difficult it is i keep going on different threads but at least you are telling your story,i have 13yrs to tell, probably will take as long to tell my story but at least i have someone to communicate with.

    great place to get things off your chest.

    love daisymaid
     
  7. Amy

    Amy Registered User

    Jan 4, 2006
    3,453
    Keeps us all on our toes!
    Amy
     
  8. bel

    bel Registered User

    Apr 26, 2006
    757
    coventry
    hi amy
    Before i loose my nerve could you thank ken -norman for me
    i think i have put a brave face on for so long and tried to do it all by myself i am finding it so hard to completly open up
    Norman said tell us more about your problem which bless him it is what i need
    and he is right
    i am just wondering AND I KNOW ITS SELFISH as you have enought stress yourself SAY NO I UNDERSTAND but could i tell my story to you a bit at a time i do not mind anyone seeing it its nothing too much differnt from other peoples
    i just wonder if i feel i am telling it to one person instead of lots i wont feel so guilty



    BY GUILTY I AM SURE YOU KNOW WHAT I MEAN
    I am taking everything away
    Iknow its the illness

    but it is me that has to no
    could i say thanks also to connie


    love bel x
     
  9. Amy

    Amy Registered User

    Jan 4, 2006
    3,453
    That's OK Bel,
    I'm here, and ready to listen. Take things at your own pace. I'll pass on your thanks to the others.
    Would you like me to tell you a little about them, they won't mind, because they post on other threads.
    Norman is 79, and looking after his wife Peg at home. He keeps a lot of us going, with his motto Day by Day - stops us looking too far ahead. Can pull some very strange faces (I've seen pictures on other threads).
    Ken has dementia; I can't remember how long he has been diagnosed. He helps us to understand things from a different point of view. His strength and courage, and determination,are a great inspiration. Connie looks after her husband Lionel; Lionel has early onset dementia - Connie is great for sending hugs when you really need them.

    So when you are ready Bel, talk to me. I am 45, my mum is 74 now. She first showed signs of dementia in her mid to late 50's.

    Love Amy
     
  10. connie

    connie Registered User

    Mar 7, 2004
    9,519
    Frinton-on-Sea
    bel dear, thanks appreciated but really not necessary. This is a mutual forum, and we are here to help and advise each other.

    Please take as much time as you need to tell your story, or just post replies to other threads along the lines of "In our case..................) sometimes that is easier.

    No pressure here, and congrats on mastering the computer. Well done.
     
  11. dmc

    dmc Registered User

    Mar 13, 2006
    1,157
    hiya bel

    just found your thread and wanted to say hi, im a newish user and it is strange to be talking to strangers about your innermost thoughts, but you soon get over it and i find once i start i have trouble stopping:eek:

    ive had a lot of laughs the last few weeks with some of the threads and quite a lot of tears too, but its such a friendly site my partner thinks im having one of those cyber affairs i think cos im always on the computer :D
    looking forward to getting to know you

    best wishes :)
     
  12. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    Hi bel

    I have not been on TP for Long as well , its hard at first to pure it all out in what your feeling in one go, for me it was embarrassing & felt oh no what have I done :eek: but the response from every one on TP was so amazingly understanding ,it was relief, as the saying go a problem aired is a problem shared.
     

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