Can anyone help me with advice as i don't know where to turn. My mother has we think lewey body disease as no one has been able to give us a definete diagnosis, she is currently 71. This has been progressing for the past 7 years. She has been in a nursing home for the past 2 years following a fall were she broke her hip. At this time her mental condition was deteriating quickly and the dementia was becoming very obvious. Since being in the nursing home she has been unable to leave her bed is totally incapable of doing anything for herself and is fed via a tube into her stomach. She can sip very small amounts of water when given to her by the carers although most of her fluid goes via her feeding tube.
She no longer recongnises us and only mumbles when she is speaking to her halucinations, so there is very little communication with her. The majority of the time she is asleep when we visit but we are unable to wake her We feel as if we have been abandoned by the medical profession. Her neurologist last saw her 18 months ago, as we cannot move her out of the nursing home, he paid one visit to the home and then said there was no more he could do. The GP visits if she picks up an infection but apart from that there is no communication or medical intervention
The nursing home look after her well but obviously there is no quality of life for her now. The advice i am looking for and i know this is something that no one can tell me for sure, does any one have any experience of a similar situation and how long it is likely to last. Does anyone know where we can go for advice on this, who we could speak to is it the GP?
Any advice would be very gratefully received. Thank you
She no longer recongnises us and only mumbles when she is speaking to her halucinations, so there is very little communication with her. The majority of the time she is asleep when we visit but we are unable to wake her We feel as if we have been abandoned by the medical profession. Her neurologist last saw her 18 months ago, as we cannot move her out of the nursing home, he paid one visit to the home and then said there was no more he could do. The GP visits if she picks up an infection but apart from that there is no communication or medical intervention
The nursing home look after her well but obviously there is no quality of life for her now. The advice i am looking for and i know this is something that no one can tell me for sure, does any one have any experience of a similar situation and how long it is likely to last. Does anyone know where we can go for advice on this, who we could speak to is it the GP?
Any advice would be very gratefully received. Thank you