mandyp said:
I have only one criticism (which won't include Bruce as Jan is a young person with Dementia).
The BBC site highlights people over 65 and 80.
Oh, I so agree with you. The AS funded report on which all the publicity is based minimises to the point of almost disappearing the young person aspect. I believe the interpretation and presentation are flawed, for the following reasons:
The report looks at the number of people who have Young Onset dementia today, and it extrapolates by means of a sort of poll for the years to come.
So, in effect - it seems to me and I am not an 'expert' though I do know what I have seen in the wide world - the report only covers the number of Young Onset people who are still below the age of 65 that appear each time they measure.
For instance, Jan was aged 50 when she started her symptoms, so would then be measured as a Young person.
If she were measured now, when she is 66, she would be measured as an old person with dementia.
I believe the Young onset people should be measured as such until the end, otherwise, the figures will only represent the NEW [mostly] people diagnosed.
I stand ready to be corrected but that is my belief. Hope this makes some sense... to someone..
For my part, I plugged the young aspect at the conference today and that produced huge reaction!