1. youngest_son

    youngest_son Registered User

    Oct 15, 2005
    21
    Yorkshire
    Hi all, it's a long time since I posted, I've been checking in most days though.

    I saw this on the BBC's website today, not too sure if anyone else has seen it (apologies if this has already been posted);

    http://news.bbc.co.uk/1/hi/health/6389977.stm
     
  2. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    68,647
    Kent
    Thank you for that. It`s always helpful to raise awareness of items relating to Alzheimers and Dementia.
     
  3. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    68,647
    Kent
    I heard the radio broadcast but am hesitant to watch for it on TV. My husband would be with me and I feel there might be just too much information for him. Does anyone else feel the same?
    Sylvia x
     
  4. Lila13

    Lila13 Registered User

    Feb 24, 2006
    1,342
  5. Skye

    Skye Registered User

    Aug 29, 2006
    17,000
    SW Scotland
    Bruce, I've just listened to your radio 4 interview, and watched the BBC News report. Thank you so much for that, it was the most moving thing I've seen or heard for a long time. Strangely, I found the radio interview the more moving, possibly because the TV report focussed more on the financial aspects.

    But they were both excellent, and your personal story makes it so poignant. There was a warning before the news item that some people might find it distressing, but I think 'moving' would have been a better description. The love you showed for Jan took the 'distress' out of the situation.

    Well done to all concerned.
     
  6. mandyp

    mandyp Registered User

    Oct 20, 2004
    150
    Glasgow
    Hi

    I have only one criticism (which won't include Bruce as Jan is a young person with Dementia).

    The BBC site highlights people over 65 and 80. MSN mentions it being a disease that affects the elderly:

    http://news.uk.msn.com/Article.aspx?cp-documentid=3513408

    It would have been nice if they'd also mentioned the younger people who can also get it. That can highlight that residential care etc may not be available because the sufferer isn't old enough.

    I sometimes wonder if there's too much emphasis on this being a disease that affects the elderly. I wonder if people are less compassionate about elderly people, just seeing it as something else failing as you get older. To be honest I think that's a sad reflection on today's society.

    I don't want anyone to think that I don't think the publicity is good, I certainly do. Lets hope that someone will sit up and take notice

    Mandy
     
  7. Sweet Pea

    Sweet Pea Registered User

    Dec 20, 2006
    24
    North Yorkshire
    BBC coverage

    Hello Bruce

    Hazel has said it all, so well. I just caught the end of the BBC coverage this morning and was so pleased with the manner in which Alzheimer's was portrayed, with sympathy, concern...and loads of love...very well done Bruce, and thank you!

    Keep up the good work

    Love Sweet Pea x
     
  8. Nebiroth

    Nebiroth Registered User

    Aug 20, 2006
    3,518
    I've found that a number of news articles in various places have stated that dementia is "a disease of the elderly". This is, of course, entirely incorrect. There are many type of dementia, and even Alzheimers can only be described as predominantly a disease of the elderly.

    What was really depressing is the BBC's own Talking Point forum. The display of ignorance is possibly forgivable, but some readers have actually made jokes about the subject.

    I see that the Daily Mail's font page highlighted the outrageous NICE decision, which is a good thing, as is their "£2.50 a Day" campaign.
     
  9. Brucie

    Brucie Registered User

    Jan 31, 2004
    12,413
    near London
    Oh, I so agree with you. The AS funded report on which all the publicity is based minimises to the point of almost disappearing the young person aspect. I believe the interpretation and presentation are flawed, for the following reasons:

    The report looks at the number of people who have Young Onset dementia today, and it extrapolates by means of a sort of poll for the years to come.

    So, in effect - it seems to me and I am not an 'expert' though I do know what I have seen in the wide world - the report only covers the number of Young Onset people who are still below the age of 65 that appear each time they measure.

    For instance, Jan was aged 50 when she started her symptoms, so would then be measured as a Young person.

    If she were measured now, when she is 66, she would be measured as an old person with dementia.

    I believe the Young onset people should be measured as such until the end, otherwise, the figures will only represent the NEW [mostly] people diagnosed.

    I stand ready to be corrected but that is my belief. Hope this makes some sense... to someone..

    For my part, I plugged the young aspect at the conference today and that produced huge reaction!
     
  10. susie

    susie Registered User

    Nov 30, 2003
    82
    shropshire
    Well done Bruce for having the courage to allow Jan to be filmed. It shows the world the side of dementia that many people don't see. I've followed your story over the years on TP and it is wonderful to see how caring you are with Jan. After today's conference about the cost of caring for dementia and the future predicted surge in cases, perhaps the powers that be will take note. We must all keep bringing dementia up to the same publicity level as cancer and heart disease.
    I admire you both and I hope I can be as caring with my husband.
    Regards
    Susie
     
  11. Kathleen

    Kathleen Registered User

    Mar 12, 2005
    639
    West Sussex
    Well said Susie

    Well done Brucie, we are very proud of you.

    Kathleen
    x
     
  12. BeckyJan

    BeckyJan Registered User

    Nov 28, 2005
    18,972
    Derbyshire
    Thank you Bruce, I am full of admiration for you and grateful for you and Jan bringing this into the public eye. It is so emotional to see you both together and it makes me feel much more resolved and determined to give my David the very best I can give. Very best wishes Beckyjan
     
  13. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    68,647
    Kent
    The daughter of a friend had cancer when she was 12. Fortunately she recovered, but now aged 43, she still attends the `Children`s Clinic` for an annual check up.
    Like cancer, dementia and all other life threatening illnesses should be charted from onset, for accurate statistics.
     
  14. cynron

    cynron Registered User

    Sep 26, 2005
    429
    east sussex
    Well Done Bruce

    I can only second what everone else has said. The coverage of the filming was good i saw it about 4 times,and i must say Bruce i felt that i knew you because i have followed your posts on this site.

    Love Cynron x x
     
  15. connie

    connie Registered User

    Mar 7, 2004
    9,519
    Frinton-on-Sea
    I can only add my voice to those who have already posted.

    I was fortunate enough to see Bruce in action today at the conference.
    Brilliant presentation of his life with Jan and her journey into dementia.

    Home this evening and rewatched all the news bulletins that I had recorded during my absence. Once again, just struck by his care and devotion.
     
  16. Carolann

    Carolann Registered User

    Apr 19, 2006
    59
    Nottinghamshire
    I can only echo the thoughts of those who have already posted.

    I have just seen Bruce and Jan on the 10 o.clock news. Well done Bruce for highligting the case of Dementia sufferers and their carers.

    I have to admit it really touched me and I shed a few tears - I lost my Mum to Dementia - she died 4 months ago.

    Well done Bruce,
    Carolann
     
  17. Tender Face

    Tender Face Account Closed

    Mar 14, 2006
    5,379
    NW England
    Bruce, I have only managed to catch a snippet of what you have achieved today .....

    Bravo for your great courage and selflessness....

    With love and thanks, Karen, x
     
  18. May

    May Registered User

    Oct 15, 2005
    627
    Yorkshire
    Thank you Bruce, I too only caught a snippet of today's coverage on the Ten o'clock news, your love and care shine through
     
  19. a_daughter

    a_daughter Registered User

    Jan 30, 2007
    18
    South Buckinghamshire
    "The government welcomed the London School of Economics and Institute of Psychiatry research, and said dementia care was already a priority. "

    You could have fooled me !!!
     
  20. CraigC

    CraigC Registered User

    Mar 21, 2003
    6,630
    London
    Well done Bruce and Jan. It was just fantastic seeing you on the TV and some really decent coverage about dementia on prime time TV. News 24 also showed a lot of footage of Bruce sparking some interesting debate.

    thanks
    Craig
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.