Thank you all for the recommendations of good boks. 'Learning to speak Al' is just wha I want as communicating efectively with Mom is becoming more difficult and I am hoping the right words will stay in her mind a while. sooty
There is a very good book called "Dementia : Alzheimer's and other dementias", by Harry Cayton, Dr Nori Graham and Dr James Warner. ISBN 1859590756. It has really good practical advice and answers all those questions you can't ask the doctor. It has become my bible.
I hope you are only fearful of Alzheimers and not of Talking Point. You will make lots of friends here who probably share your fears, so whenever you feel like posting, there will always be someone here.
It would be interesting to know a bit about you and who you are caring for. Don`t be lonely, you are among people who understand and are all going through the same, or similar pain.
I'd like to recommend a book called Letting Go Without Giving Up.
It's published by Alzheimer Scotland, and written by Jenny Henderson, who is an Alzscot worker based in Dumfries. She's now an acknowledged authority on palliative care, and runs courses all over England and Scotland. She's also been a huge personal support to me.
Three years ago Jenny was funded by a lottery grant to investigate palliative care for dementia sufferers, at home, in NHs, and in hospital, and to write a book.
It's about the feelings and emotions when people are having to be admitted to care homes, and is useful for both carers and care workers. She gave me a copy yesterday at the course, and I read it through last night. It's excellent.
It's not about choosing a care home, there's a separate publication for that, which I'm going to send for.
It costs £2.50, free if you're a carer in Scotland, and can be bought from the Alzscot website.
The stories in this book struck so many chords that I wish I had read it years ago – I also wish it could be recommended to every carer!
Dr. Stokes is an amazing wordsmith, with a remarkable ability to see past the mask of Dementia. His accounts illustrate in a very humbling way how easily we can all be misled by the apparent effects of Alzheimer’s. Barbara Pointon’s foreword expressed much of what I felt as I read the 22 individual stories: this book will open eyes, it will inform and educate, it will change lives – I cannot recommend it highly enough.
Bruce and Connie, your posts have reminded me of how I became aware of this publication:
I ordered it after I read an excellent review by Janet Baylis in the May edition of 'Living with Dementia'.
There is a whole page (p.17) about Dr. Stokes in the June edition.
Perhaps 'Bruce the whiz-kid' could provide a link??
Just about to order 'The Importance of Food and Mealtimes in Dementia Care: The Table is Set'
Anyone read it care to share their views?
'Mealtimes are about much more than just re-fuelling, and the importance of mealtimes in the care of people with dementia cannot be overestimated. Using her extensive experience of working with older people with dementia, Grethe Berg explains how mealtimes can be used as natural opportunities for meaningful interaction, socialising and reminiscing, and useful forums for taking part in familiar tasks. The book considers the social significance of mealtimes and their role in maintaining patients' feelings of social attachment and well-being as well as the impact of the symptoms of dementia on food and mealtimes. It also explores different types of residential care and how they can make mealtimes a focus of activity for patients. Finally, the author discusses practical implementation strategies, considering variables such as building design, interdisciplinary collaboration, organization of staff and residents, and staff participation and conduct at mealtimes. This book provides much-needed help and practical strategies for care managers and carers to reclaim mealtimes as positive experiences for people with dementia. '