I have just joined today my husband is in a care home and he has vascular dementia he has had it since he was 61 years old he is 69 now he still has insight to most things he cant dress his self or wash his self he isnt very nice to me . I am having trouble with his care home and want to move him but I have been told by social services I cant move him as they have his care in hand and I am not allowed to move him.Also he was getting funded by chc but they have just stopped his funding because they say he is getting better I didnt know you could get better from this terrible illness .I am at my witts end thinking what I can do next.
I know what being at wits end feels like, bobbybingo. I've had a few years experience myself. Thank God, I've come to the point, now where people have stepped up to the plate to help.
I don't know where your SW works from. I would imagine doing a bit of your own research, or talking with Alzheimers Society might be a good place to start; or even take your concerns to Citizens Advice.
Take nothing by word of mouth only; get your concerns down in writing and all info returned from whoever you go to, also in writing. It'll only serve to help you as more time goes by. whilst you're working through this problem.
Talk about what troubles you and get all the advice you can.
From what I've learned over a very long time: there's getting fobbed off, and there's getting the truth. Truth takes a bit of time to dig for, but dig, you ought. Do try C.A.B. I hear they are good. If you've got CHC, you really don't want to lose that.