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Best place for treatement in the UK

Discussion in 'Memory concerns and seeking a diagnosis' started by Dayperson, Feb 27, 2015.

  1. Dayperson

    Dayperson Registered User

    Feb 18, 2015
    277
    Female
    Shropshire
    Which area of the UK is best for diagnosing and treating dementia?

    Also how long does the process take, i.e. time on waiting lists etc. I heard on TV yesterday that it took someone 3 years to get diagnosed, is this normal?
     
  2. Beate

    Beate Registered User

    May 21, 2014
    11,746
    Female
    London
    #2 Beate, Feb 27, 2015
    Last edited: Feb 28, 2015
    If we knew that we'd probably all move there! It varies even from borough to borough in a big town. It took us six months to get from referral to diagnosis.
    Then it depends what your area or borough offers in care options, how easily accessible and expensive they are, how rich your council is and how it is going to implement the new care act.
    In general you might fare better in a bigger town, and an Admiral Nurse close by also helps.
    Scotland has a slightly different system I believe but I can't remember the details.
     
  3. Dayperson

    Dayperson Registered User

    Feb 18, 2015
    277
    Female
    Shropshire
    OK, let me rephrase it then, where should we avoid for treatment as we have to move back to the UK because our doctor refuses to send mum for diagnosis where we are in France.
     
  4. marsaday

    marsaday Registered User

    Mar 2, 2012
    541
    I'm from Northern Ireland and I heard that we have one of highest diagnosis rates. Doesn't necessarily man the after care is great though but the cost of a care home among the lowest in UK. And any care visits provided in own home (up to max of 4 per day I think) are free unlike in England. Also housing etc quite cheap.
     
  5. nitram

    nitram Registered User

    Apr 6, 2011
    19,277
    Male
    North Manchester
    As has been said a large town preferably with an >>>Admiral Nurse<<< is probably the best choice for ongoing treatment. Large towns will have better scanning equipment available.

    As regards diagnosis you will first have to obtain UK residency so that you can be registered at a GP, the next problem may well be getting the person to come out of denial and agree to be referred to a memory clinic.

    I think the time scale then depends not only on the clinic but on how the person presents themselves, my local clinic has 6 month or 1yr recalls for most people but for my wife it was every 3 months from Autumn 2009 to Autumn 2011 after which I used to phone the consultant's secretary if I had problems.

    It took 4 weeks from referral with a CT scan and MRI to diagnose MCI, in summer 2011 it took a further MRI and SPECT scan to reach a diagnosis of severe degree LBD.

    There seems to be an increasing tendency for memory clinics to discharge people after a few appoints (maybe only one) and wait for them to be referred again if the GP detects new problems.

    As has also been said the partial introduction of the Care Act 2014 in April is going to radically change things, also in my area (Greater Manchester) the health (NHS) and care (LA) aspects are being combined and will come under the complete control of the GMC (Greater Manchester Council) and 10 LAs. No idea what the outcome will be. Other areas may follow suit.
     
  6. jugglingmum

    jugglingmum Registered User

    Jan 5, 2014
    5,323
    Female
    Chester
    It took 6 months to get my mum a diagnosis from GP referral, which was undertaken in Worcester by my brother - the system there takes 6 months to do this as they send the CPN out a couple of times before referral goes to the consultant, and then he saw her a couple of times and she had a scan, from what I can gather from my brother they were looking for signs of stability/deterioration to ensure they diagnosed the correct form of dementia and there wasn't any question she didn't have dementia. (reading on TP not all types of dementia are suitable for medication). This was frustrating at the time but does make sense in total.

    Other help comes from SS which as my mum is self funding I haven't really accessed, when we realised the issued I moved my mum into an assisted living flat (extra care) and they required an SS assessment to grade her care package, but then the case was closed.
     
  7. Moonflower

    Moonflower Registered User

    Mar 28, 2012
    775
    Dayperson, there was a poster who used to contribute here who was based in France, and she was given a lot of support - GP and other - with her mother, who had dementia. Might it be worth, at least in the short term, trying to find a more sympathetic GP?
     
  8. Izzy

    Izzy Volunteer Moderator

    Aug 31, 2003
    59,942
    Female
    Dundee
  9. nitram

    nitram Registered User

    Apr 6, 2011
    19,277
    Male
    North Manchester
    This previous thread
    http://forum.alzheimers.org.uk/show...-with-dementia&p=765909&viewfull=1#post765909
    contains two posts from people who are happy with the French system, I know from experience with expats that the system does react faster than the UK one.

    Perhaps you should make a determined effort to locate a doctor in France who is more sympathetic, you have said in a different thread that you father would be prepare to move anywhere in France or England if good treatment was available.

    You could start by asking questions on
    http://britishexpats.com/forum/france-76/
     
  10. Dayperson

    Dayperson Registered User

    Feb 18, 2015
    277
    Female
    Shropshire
    Thanks for all the links and suggestions. It's handy to know that she should be entitled to treatment in France and I'll have to look into all the possible options including whether we can get back to the UK quicker or persevere with the system out here. It's difficult juggling work with mum and for the last few years I've been struggling because she gets me upset with her behaviour. Then I have to pull myself back together and carry on and it disrupts me working which pushes back the date we can return.
     

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