Hi Everyone, This is my first time posting in the forum. I'm Emily (30) and My Mum (59) has recently been diagnosed with early onset dementia, the tests have shown that she has a form of dementia known as Bensons Disease - which I have read only 5% of people with dementia have. Due to the rarity of it none of the experts can give any idea of how long she has had it or what the long term effects will be (all I really know is it affects spacial awareness and motor neutron function). I was wondering if anyone else has experience of Bensons disease? There are lots of things I would like to discuss in time like how to deal with such difficult news, feeling gully as I live in another country and the financial side, but I thought this would be a good place to start!