Dear egg, I was reading back over some of the messages (not sure I really understand threads etc...) and I am surprised that (unless it's there and I can't find it) not many people seemed to talk about the problem of how to help people - usually younger? - who are aware of the significance of the diagnosis, and worried by it. Everyone seemed to focus on the practical aspects of caring, but helping your husband to cope with the emotional side of it seems to be much harder. I haven't any experience of this but surely others have? Or maybe some of your local support agencies can help? I think if you can find the right thing to say - whatever form of words you can find which feels right for you and reassures him -it would be a help.