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At last someone who listened

Discussion in 'ARCHIVE FORUM: Support discussions' started by ROSEANN, Jun 5, 2008.


    ROSEANN Registered User

    Oct 1, 2006
    Today was hubbys check up at the memory clinic.
    We had moved to a hospital than is going to be a new center of excellance for people with Dementia,so far so good.
    The Doctor we saw was lovely, talked to hubby first asked how he was and how did he feel.
    She then turned to me and asked how I was and if I was coping all the time keeping one eye on hubby and how he was behaving.
    When I told her I was not coping she asked if I had applied for respite I told her I was still waiting for SS to get back to me so she said she would chase them up for me.and also arrange for CPN to call me.
    When it came time for us to go I asked her if she was going to do the memory test and she said we do things different here I would rather listen to what you tell me because you are with him all the time.
    So as I said at last someone who is willing to listen to us carers.
  2. Skye

    Skye Registered User

    Aug 29, 2006
    SW Scotland
    Brilliant, Roseanne!

    Wonderful to have the carer listened to, rather than just going by numbers.

    And even better that she's prepared to take action.

    You must be feeling so much better tonight!:)

  3. TinaT

    TinaT Registered User

    Sep 27, 2006
    Oh Roseanne,

    What a relief for you the visit must have been. Consultants who do 'consult' are so very valuable. Sufferers and carers are a valuable resource if only we are asked in the right way. To be honest I think it is a much more sensible way of checking on a patient than simply using memory tests as the ultimate measure of where things are currently at with the disease. I wish that all professionals we have to deal with were as understanding and good at their job as the one you have encounted today.

    I would once again chase up Social Services and tell them that your Consultant has strongly recommended that you be given respite care urgently. I have used this method very successfully before. Social Workers are inclined to get their 'fingers out' and move things along if they feel that a Consultant is involved!

    Very best wishes to you both.


    ROSEANN Registered User

    Oct 1, 2006
    Dear Tina
    The Doctor has a monthly meeting tomorrow with a SS manager and is going to speak to her about me so I will have to wait and see what happens, but if I have not heard anything when I come back from Scotland I will phone them my self.

    You are right I do feel better, I now feel that at last things will move on.
    I do hope things are better for you and John
    Love Roseann
  5. BeckyJan

    BeckyJan Registered User

    Nov 28, 2005
    Hello Roseann:

    It is incredible that we should feel relieved when someone is actually doing their job properly. I am so pleased you have got a good consultant and I hope her input is going to help YOU.

    Hopefully you can go off to Scotland with a glad heart and ever hopeful. I am sure you do need respite, as many of us do.

    Just for my interest, how often do you see (a) the Consultant and (b) have a memory check? We have not had memory check since last Oct. (despite the downturn with David), and he has not seen consultant for about 18 mths.

    Please keep us posted. Love Jan

    ROSEANN Registered User

    Oct 1, 2006
    Hi Jan
    we have been seeing the consultant every six months at the memory clinic and then every six months another consultant about hubbys depression, so he has seen someone every three months but now we are going to just one hospital it will be every six months, but in between he has to go for a review with all the people involved in his care.
    This is a new thing in our area and so far I am very impressed.[except for SS of course]
    All the best Roseann
  7. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    Hello ROSEANN

    Doesn`t it make a difference when you feel the professionals are on your side. I`ve had some of that feeling too lately and it means so much.
    I`m so glad you now feel supported.
    Love xx
  8. May

    May Registered User

    Oct 15, 2005
    Wow ROSEANN.....

    Am so impressed by that approach. It's vital that the professionals take carers on board and listen to what they have to say. Sounds like you have a good system and I'm glad that you will be getting the support you need.
    Enjoy Scotland and I hope the 'help' is on the doorstep, so to speak :D, when you get back. Take care.
  9. Tender Face

    Tender Face Account Closed

    Mar 14, 2006
    NW England
    That's lovely Roseann ... I'm sure none of us expect miracles - but sometimes plain 'common sense' doesn't go amiss! ;)
    it's so good to hear of things going right ...:)

    Love, Karen, x

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