Dear Jan
@Jezzer
I’m sorry you had such a bad visit today and totally understand your wish not to talk about it. I too often find my visits to Mum too painful to derive any benefit from discussing them.
I understand also how you feel about the sheer hell of these last stages, and your anger at the way society in general turns a blind eye. I agree too with
@YorkshireLass.
Yet.... my closest identification is with what
@kindred says “my personal, heartfelt belief is that while consciousness gives the sufferer even a small amount of pleasure, then we as humans help to maintain it. After that, I do not know why we do, except that the ethical and accountability problems are too enormous”. So, like you, I keep holding mums hand, murmuring poetry to her and hoping there is some meaning to it all.
As to the use of the word ‘journey’, sadly my thread about Mum is called ‘Mums Journey’ . I have been thinking for some time that it is too light and banal to encompass the situation.....but I started it going on five years ago, when Mum was in the community and it didn’t seem so inappropriate. The fact is that I don’t watch reality TV, so to me it is about mums journey through life, and it doesn’t have any other connotation. I accept that in today’s society, though, and given mums progression, it doesn’t really fit the bill.
Crazily, this has upset me a bit, but I like the continuity of mums thread so after consideration, I doubt I’ll change it.....though if starting now, it would be called something different.
Love and hugs to you and I hope tomorrow is a better day for you and your mum.
Lindy xx