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Anyone had experience of shaking 'fits'?

Discussion in 'Recently diagnosed and early stages of dementia' started by Rosie44, May 4, 2015.

  1. Rosie44

    Rosie44 Registered User

    Feb 25, 2015
    2
    New Zealand
    #1 Rosie44, May 4, 2015
    Last edited: May 4, 2015
    Hi All,

    My mum was diagnosed with early stages of alzheimers about 3 /4 months ago. She started taking the medication and also at the same time started to experience periods of 'dizziness'. These were regular and lasting 2-3 minutes each time, so they took her off the medication. The episodes continued and are now becoming more frequent and more severe. She starts to shake, and is responsive, but cannot do anything until the shaking has passed. They can last anything from a couple of minutes to an hour and generally start mid morning until late afternoon. Never at night funnily enough.

    No-one seems to know what is causing them. She was advised to see a cardiologist. He gave her a heart monitor to wear for 24 hours which showed that her heart slowed down during each of the episodes (she recorded 14 in that 24 hours). She had a pacemaker fitted, but that hasn't helped.

    Now she is seeing a Neurologist, who has requested she has an EEG as he says from her scan (when she was diagnosed), there seems to be some unusual deterioration of brain cells. We are now waiting for this appointment.

    Has anyone else come across this before?

    Thanks so much in anticipation...

    PS If anyone reads this who has admin rights, please correct the thread title for me :)
     
  2. canary

    canary Registered User

    Feb 25, 2014
    9,337
    Female
    South coast
    It could well be epileptic seizures. These are common with any brain damage - including dementia. My husband has epileptic seizures, but his are caused by a traumatic brain injury rather than dementia.
    Epilepsy is usually picked up on an EEG, which is a non-invasive, painless procedure - although you do need to keep still while it is being done. If it is epilepsy you can have antiepileptic meds and there are lots of different types, some suit one person, some suit another. Everyone is different, so if mum is put on one and it doesnt seem to be working, dont get too downhearted.
     
  3. Rosie44

    Rosie44 Registered User

    Feb 25, 2015
    2
    New Zealand
    Lewy Bodies Dementia

    Hi All,

    Mum's shaking fits have steadily got worse, more intense and longer. Dad used to be able to get her to come round by distracting her by asking her questions or walking her round the house, but not these days.
    The Cardiologist, the Neurologist are all scratching their heads and every drug they have given her seems to make things worse.
    I looked up Lewy Bodies and am thinking that this maybe what she has. Does anyone have experience of this?

    Cheers,

    Kath
     
  4. Faith57

    Faith57 Registered User

    Dec 31, 2015
    1
    Have you considered psychogenic seizures? They are caused by stress, and I believe harmless, but still need looking into.
     

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