Anybody here speak Alzheimers?

Discussion in 'ARCHIVE FORUM: Support discussions' started by jks, Mar 21, 2006.

  1. jks

    jks Registered User

    Jul 2, 2005
    67
    West Yorkshire
    Hello

    For the past few days, Dad says he doesn't feel well.

    He feels too tall.

    He doesn't want the Dr to call, or to be taken to the surgery, he says he'd rather wait and see if it gets better.

    I have asked him to explain in what way he feels unwell, but he simply repeats that he's 'too tall'. (He is perfectly cohearent and able to explain other things).
    The only idea I can come up with is maybe he's feeling a bit dizzy? Any other suggestions? (before I chop his legs off :eek: ......... not really).

    jks
     
  2. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    Dizzy could be right or am wondering does your dad ware glasses as his eyes could be hurting him
     
  3. jks

    jks Registered User

    Jul 2, 2005
    67
    West Yorkshire
    Hi There
    Yes, he wears glasses, but had his eyes checked only a couple of weeks ago. I guess it could be an eye/vision problem though. Thanks !
     
  4. Norman

    Norman Registered User

    Oct 9, 2003
    4,348
    Birmingham Hades
    #4 Norman, Mar 21, 2006
    Last edited: Mar 21, 2006
    Hi JKS
    it does not have to be the vision as such that affects the sight.
    My wife has no problem with her sight but with her focus,which is affected by AD.
    She will look above my head when talking to me sometimes and finds problems with focusing in general.
    Just a thought
    Norman
     
  5. zan

    zan Registered User

    Jan 4, 2006
    96
    staffordshire
    Dear JKS, I'm sorry but I don't know what feeling too tall might mean, but could you try asking him what might make him feel better or what might make him feel 'not too tall'. It might give you some clues as to how he is feeling. Also ask him what he thinks the doctor would advise him to do if he came to see him. Good luck, from Zan
     
  6. Áine

    Áine Registered User

    I also wondered about spatial awareness stuff, which I think is affected by dementia.
    My dad clearly doesn't see things properly and walks towards doorways etc on clear collision course with the door frame.

    The other thing I wondered about is a psychological thing ..... if he feels "small" as in like a child in need of protection from bigger people .... and being his normal adult height then feels wrong.
     
  7. rummy

    rummy Registered User

    Jul 15, 2005
    700
    Oklahoma,USA
    A wonderful book for communicating with AD is " The Validation Breakthrough" by Naomi Feil. I have read it twice and will read it again as my Mom keeps throwing new things at me and it is hard to stay on top of all of it.
    Debbie
     
  8. jks

    jks Registered User

    Jul 2, 2005
    67
    West Yorkshire
    Thanks everyone!

    Zan - excellent idea - I was so wrapped up in wanting to understand what was wrong, I never really thought of asking 'what can I do to put it right'. I am going to ask him this morning.

    Thanks again, my sanity is restored by you good people.

    Regards
    jks
     
  9. Lila13

    Lila13 Registered User

    Feb 24, 2006
    1,342
    I suppose I'd be inclined to ask a few simple yes/no questions about the "tallness". But hope that he's right about waiting to see if it gets better.

    Lila

     
  10. jks

    jks Registered User

    Jul 2, 2005
    67
    West Yorkshire
    Just back from visiting, Dad's still feeling 'a bit tall'.

    I asked Dad what might help, what we could do - he said a bit of fresh air and a walk might help.

    And it did!!!:)

    He feels much better now. We had a short walk, admiring and noseying in other peoples gardens. We spotted some hyacinths just poking through ..... Dad pointed to the tallest one, and said 'You see that one there? That ones's special....know what it's called?.....

    .......it's the 'higher'-cinth! '

    And collapsed into fits of giggles, as I did too.
    It may sound like gibberish, but my Dad always has loved puns, word-play, silly jokes like that. It's really made my day. This was something he'd have said years ago, and it was just like 'old times'.

    Just wanted to share a nice moment with you, and to say thanks again to Zan, who enabled me look at the problem from another angle.

    Best Regards
    jks
     
  11. Norman

    Norman Registered User

    Oct 9, 2003
    4,348
    Birmingham Hades
    My wife has not made a cup of tea for years.
    A few days ago she asked me would I like a cup of tea,I said "yes please".
    She replied "Well it's no trouble for you to make it is it?"
    Norman:confused:
     
  12. zan

    zan Registered User

    Jan 4, 2006
    96
    staffordshire
    Dear JKS, Glad to be of help. My Dad liked to twist words round to make new ones too. I do it now and drive my kids mad when I always call the instructions to anything the destructions. I thought it was just me but his friend visited him in hospital a few days ago and said that Dad used to do that at work. A couple of weeks ago he was managing to talk in sentences a bit. As we left we asked if he minded if we go now. He said "Yes, Scram off , then" and smiled. It was a little glimpse of the past and a good day. I'm glad your Dad liked the 'higher cynths'. If your weather is as nice this morning as ours perhaps he'll be able to have another look at them today. Take care, love Zan
     
  13. Brucie

    Brucie Registered User

    Jan 31, 2004
    12,413
    near London
    Hi Norman
    the only word that comes to mind is "magnificent" - and Peg is really that!
     
  14. Lila13

    Lila13 Registered User

    Feb 24, 2006
    1,342
    I thought everyone at work talked about destruction manuals ...

    Lila

     
  15. Amy

    Amy Registered User

    Jan 4, 2006
    3,453
    Hiya Norman
    I'm going to try Pegs question and response on my husband, wonder if he'll take the hint!
    Amy
     
  16. jc141265

    jc141265 Registered User

    Sep 16, 2005
    836
    Australia
    The key to learning to speak alzheimer's is all about exactly what jks realised, and zan already knew, one needs to start to
    .

    This is how I manage to spend an hour each day communicating with my dad, despite the fact that he can no longer talk.;) Instead of speaking English we now use, Anglish...keep coming from different angles until we pinpoint the answers, meanings, issues, intentions, reasons etc...if one wants to continue with puns, I guess I could say that, being as I dub this alzheimer's language as Anglish, I suggest if one wants to speak it, one should try angulating...or is that stretching it all too far?? Y'know pin-point something by coming at it from different angles...tri-angulating....oh never mind....it amused me at least.:eek:
     
  17. rummy

    rummy Registered User

    Jul 15, 2005
    700
    Oklahoma,USA
    That makes perfect sense Nat. Infact the book "The Validation Breakthrough" talks about something very similalr. Their reality and the memories are so skewed it is like trying to put together a jigsaw puzzle that someone left alot of pieces out of .
    Thanks for the anglish theory, it will help me as well!
    Debbie
     

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