1. Expert Q&A: Living well as a carer - Thurs 29 August, 3-4pm

    As a carer for a person living with dementia, the needs of the person you care for will often come before your own. You may experience a range of difficult emotions and you may not have the time to do all the things you need to do. Caring can have a big impact on both your mental and physical health, as well as your overall wellbeing.

    Angelo, our Knowledge Officer (Wellbeing) is our expert on this topic. He will be here to answer your questions on Thursday 29 August between 3-4pm.

    You can either post questions >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll answer as many as we can on the day.

Any suggestions for sleeping aids please

Discussion in 'I care for a person with dementia' started by exhausted 2015, Nov 18, 2015.

  1. exhausted 2015

    exhausted 2015 Registered User

    Jul 5, 2015
    624
    Female
    stoke on trent
    #21 exhausted 2015, Nov 25, 2015
    Last edited: Nov 25, 2015
    A doctor that seems to care

    Following on from my dad's sleeping problems.. Dad had an appointment at the geriatric clinic yesterday and the doctor that we happened to see was really thorough he asked in detail about all of dad's health problems even asking if I had enough incontinence pants and had got a regular supply in place, we then discussed dad's dementia and is inability to sleep I told him that I was being bounced from gp to memory clinic trying to find a solution and he said why hasn't anyone prescribed melatonin because he could see no reason why he couldn't have them.. I think he took pity on me lol as I was looking more exhausted than normal yesterday.. Last night he was a tiny bit better.. So will see what tonight brings.. I just thought what a really caring doctor he was. Fingers crossed for tonight xx
     
  2. fizzie

    fizzie Registered User

    Jul 20, 2011
    2,740
    good luck exhausted, good result, fingers crossed for you both xxx
     
  3. sleepless

    sleepless Registered User

    Feb 19, 2010
    3,232
    Female
    The Sweet North
    Hope the melatonin helps. Was this the first visit to the geriatric clinic?
     
  4. exhausted 2015

    exhausted 2015 Registered User

    Jul 5, 2015
    624
    Female
    stoke on trent
    Hi sleepless thank you xx yes it was his first visit xx
     
  5. exhausted 2015

    exhausted 2015 Registered User

    Jul 5, 2015
    624
    Female
    stoke on trent
    Thank you fizzie xx I
     
  6. di65

    di65 Registered User

    Feb 28, 2013
    771
    new zealand
    I hope the Melatonin works for you. It often takes a few days to "kick in". I tried it for myself a few years ago and it was wonderful. It is a completely natural product, as melatonin is produced naturally in the body, but sometimes the production line goes wonky:)

    Good luck

    Di
     
  7. Goldsmith

    Goldsmith Registered User

    Oct 21, 2015
    18
    Maldon, Essex
    #27 Goldsmith, Nov 26, 2015
    Last edited: Nov 26, 2015
    We have the same not sleeping problem with my FIL. All day long he is absolutely fine, he sits for hours watching any type of sport we can find on TV and all the repeats. He visits the loo no more than the average person and just takes little cat naps in the chair but as soon as we put him to bed he is up and down, going to the loo every 10 minutes and appears unable to use a bottle so its dressing gown and slippers on, walking frame ready and me behind him to steady him for the walk to the bathroom. He appears totally unable to relax and is perpetual motion all night until around 6 o'clock when he just collapsed out of exhaustion. For a while paracetamol worked and then we tried Nightol and then both but they dont do the trick now. Our GP is aware and reluctantly, after three requests - she prescribed Zimovane. FIL fought this and to see him staggering around was pityful. He is now in hospital following a fall (his night sitting carer fell asleep and he fell cracking his head open in two places) and has to have two nurses with him day and night and still they wont prescribe something to calm him. I cant believe there is no drug on the market that can calm dememtia patients. Our argument is he falls and stumbles constantly anyway, he is very unsteady and therefore is never left alone so if a drug makes him unsteady we are there for him anyway. We never leave him to walk anywhere without our support.
    Exhausted I am waiting with much hope that you had a much better last night. Fingers crossed.
     
  8. exhausted 2015

    exhausted 2015 Registered User

    Jul 5, 2015
    624
    Female
    stoke on trent
    Hi goldsmith really sorry to hear about your problems with your fil.. It sounds so very similar to my own it's so frustrating when there doesn't seem to be anything that can help.. I'm hoping that the melatonin will help dad, two nights in and no change yet but I believe that they take some time to work.. My best wishes exhausted 2015 x..ps dad had Zimovane and did nothing for him too
     
  9. exhausted 2015

    exhausted 2015 Registered User

    Jul 5, 2015
    624
    Female
    stoke on trent
    Hi di thank you I can only hope that it will work xx
    .
     
  10. yadit0

    yadit0 Registered User

    Mar 26, 2014
    21
    Leicestershire
    Yadit0

    All the posts I have read are my situation to a T mum is just the same active and alert as much as she can be during the day but come 5pm to 6am she changes in the last 7 weeks I have only had 2 nights sleep. If I'm not getting in and out of bed every half hour or so I'm sleeping on her bedroom floor. As we live in a bungalow and her bedroom is facing the bathroom I have put hook and eye on the lounge door so she can only wonder up and down the hall with no obstacles. Her gp will not prescribed sleeping pills, have tried the paracetamol, soft lights calming music to no avail instead of getting our every time I hear her shuffling around I tend to leave her to it by about 6am ages finally asleep in bed till 8 when she wants tea and breakfast. I'm just rolling along with it but exhausted.
     
  11. exhausted 2015

    exhausted 2015 Registered User

    Jul 5, 2015
    624
    Female
    stoke on trent
    So sorry to hear that your situation is so similar to mine, could you contact her GP again.. Having said that I know that they are reluctant to prescribe anything.. Hope that you find a solution soon xx
     
  12. Sam Wilson

    Sam Wilson Registered User

    Nov 4, 2015
    1
    Lymington
    My solution for Richard

    First time I have used this - i hope it works. I recently started caring for a friend with mid term dementia. He had no medication when I arrived and was really disturbed at night. Got him Zopiclone which worked, but all the "Z" drugs result in tolerance and addiction if taken daily. My super GP suggested an anti histamine ( Atarax) This makes you drowsy. Then I went and bought "Quiet life" tablets. They contain a variety of herbs notably Valerian. They are great! Using these in combination works 90% of the time. On nights when he doesnt settle ultimately I give him a Zopiclone, which is ok - just not too often. My mate is 90. You might need to slowly reduce the "Z" as 7.5 is the strongest. How long has he been taking them? Hope this helps. Sam.
     
  13. Biggest Fairy

    Biggest Fairy Registered User

    Jan 26, 2015
    37
    Inverness
    Yup. We're the same. GP wouldn't prescribe anything so months of no sleep until we got hold of the psychiatrist.

    Melatonin seemed to work briefly and then stopped. 3.75mg of Zimovane just calms him ever so slightly and the GP hasn't prescribed the Memantine that she was supposed to.

    Just off to phone them now. I just wish I could force the GP to do a week caring for FIL. Maybe then she would appreciate the value of sleep.


    Sent from my iPad using Talking Point
     
  14. 19maggie

    19maggie Registered User

    Jul 18, 2014
    3
    Hi Exhausted,
    I am in exactly the same position. My husband has dementia and I care for him 24/7 myself and can manage reasonably well with sleep but after several nights with no sleep to speak of I am like a zombie. I also tried the doctor for sleeping tablets and reluctantly he gave me some but they had little or no effect apart from making him unsteady on his feet when he did get out of bed. My husband is 75 and was diagnosed 2 years ago but looking back I think he had signs 2 years before that. I would be grateful if anyone can give any tips. Maggie
     

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