• All threads and posts regarding Coronavirus COVID-19 can be found in our area specifically for Coronavirus COVID-19 discussion.

    You can directly access this area >here<.

Any others with LBD diagnosis out there ?

The Engineer

New member
Jun 8, 2018
5
0
RETURNING MEMBER

Hello. I joined in 2018, very scared and confused, awaiting diagnosis. Two and a half years later, specialist says Fronto-Temporal Dementia (FTD) but symptoms are Lewy Body Dementia (LBD). I always have to make things complicated!!

I have got to (and gone past) the point where I can manage my affairs, so we've already got the Manx Enduring Power of Attorney (EPA) so my wife manages our affairs. I remain at home, my wife is my sole carer.

My condition is physically disabled by ME, taking a lot of painkillers to overcome head and muscular pain. Physically, limited in mobility. Having terrible Lewy Body nightmares, mentally very tired and confused through most of the day. No incontinence, have swallowing problems, digestive problems, glaucoma, tremors, speech issues.

So, any fellow LBD sufferers out there??
 

nae sporran

Volunteer Host
Oct 29, 2014
9,106
0
Bristol
RETURNING MEMBER

Hello. I joined in 2018, very scared and confused, awaiting diagnosis. Two and a half years later, specialist says Fronto-Temporal Dementia (FTD) but symptoms are Lewy Body Dementia (LBD). I always have to make things complicated!!

I have got to (and gone past) the point where I can manage my affairs, so we've already got the Manx Enduring Power of Attorney (EPA) so my wife manages our affairs. I remain at home, my wife is my sole carer.

My condition is physically disabled by ME, taking a lot of painkillers to overcome head and muscular pain. Physically, limited in mobility. Having terrible Lewy Body nightmares, mentally very tired and confused through most of the day. No incontinence, have swallowing problems, digestive problems, glaucoma, tremors, speech issues.

So, any fellow LBD sufferers out there??
Welcome back, Engineer. Sorry you have so much on your plate.