• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

Any experience of Baclofen with Nefopam?


Registered User
Nov 9, 2015
MIL is on Baclofen and Nefopam to control the pain and muscle spasms after a stroke.
She is immobile apart from the limited of use of her right arm and has a team of carers who go in throughout the day to hoist and tend to her personal needs.
My Mum lives close by (they are in a retirement village) and pops in to see MIL a couple of times a day and sits with her for a few hours and Hubby, myself and BIL share her general care and visit several times a week between us.
I posted a couple of weeks ago about MIL falling asleep a lot and being difficult to wake but this is now getting much worse and she can't seem to stay awake.
Her care team say it's probably poor sleep at night but she was never this bad, and so I googled her meds and they both mention sleeping as well as hallucinations (she gets these on and off too)
I am thinking they may have increased her meds and am going to try and talk to her GP on wednesday to express our concerns, and hopefully they will be able to adjust her meds or suggest others.
Does anyone else have experience of these meds and similar side effects, wither in combination or singly?
Thank you


Registered User
Jul 20, 2011
Hi Crystal
I don't have experience of these meds so i'm replying to bump this post up to the top and hopefully someone will be along soon x


Registered User
Nov 9, 2015
Thank you Fizzie :)
Sadly it doesn't look like it's a combination used much, I can find very little on the internet generally.
I'll see what her GP says tomorrow. Funnily enough MIL has been awake more today :)

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