1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

  1. Marnie63

    Marnie63 Registered User

    Dec 26, 2015
    1,600
    Hampshire
    Mum clearly had another stroke in the night, cannot get her out of bed, left arm immobile again. Carer just arriving and have called GP for a home visit. No more hospital ...
     
  2. Bunpoots

    Bunpoots Registered User

    Apr 1, 2016
    3,040
    Nottinghamshire
    On Marnie, I'm so sorry to hear this! Your poor mum! How are you coping?
     
  3. 2jays

    2jays Registered User

    Jun 4, 2010
    11,604
    West Midlands
    Oh Marnie sorry to read this

    Thinking of you xx
     
  4. jugglingmum

    jugglingmum Registered User

    Jan 5, 2014
    5,192
    Female
    Chester
    Marnie - so sorry to read this, thinking of you
     
  5. Lavender45

    Lavender45 Registered User

    Jun 7, 2015
    1,598
    Liverpool
    I'm thinking of you and your mum too. X
     
  6. DollyBird16

    DollyBird16 Registered User

    Sep 5, 2017
    1,186
    Female
    Greater London
    @Marnie63
    Wrap around hugs for you and gentle hugs for Mum.
    Take care. X
     
  7. Marnie63

    Marnie63 Registered User

    Dec 26, 2015
    1,600
    Hampshire
    Thanks all. Just had to write it down somewhere - it's dreadful how this disease is tormenting her. Actually, it's not as bad as the August one. She couldn't lift her left arm at all this morning but now can lift it a bit, though says it hurts, which is something new. She can swallow still, which is great - breakfast complete. Still waiting for GP though. Her breathing is a bit wheezy, but may be down to tiredness due to new stroke.

    It feels like four steps forwards, and now three back. The last couple of days she was walking around the house independently with the frame, just with supervision to keep an eye on balance and edges of carpets, etc. This morning the carer and I tried to get her to stand on the rotunda, but she was too weak and was leaning heavily to the left. I think she'll be in bed for a few days and we'll see how it goes from there. Not sure if she will spring back a second time, that might be too much to ask for at 91.
     
  8. jorgieporgie

    jorgieporgie Registered User

    Mar 2, 2016
    1,985
    YORKSHIRE
     
  9. jorgieporgie

    jorgieporgie Registered User

    Mar 2, 2016
    1,985
    YORKSHIRE
    Oh Marnie I too are thinking about you both. xxx
     
  10. nae sporran

    nae sporran Volunteer Host

    Oct 29, 2014
    5,927
    Male
    Bristol
    Worrying times for you Marnie. Sorry I can't offer more than words of support
     
  11. love.dad.but..

    love.dad.but.. Registered User

    Jan 16, 2014
    4,406
    Kent
    Sorry to hear that your mum has more to contend with but thinking of you both x
     
  12. Tin

    Tin Registered User

    May 18, 2014
    4,826
    UK
    So sorry Marnie, take care. Hope the gp can reassure you. In her world, she has been very active for past few weeks. Worrying I know, but lets just hope it is all down to tiredness.
     
  13. Marnie63

    Marnie63 Registered User

    Dec 26, 2015
    1,600
    Hampshire
    #13 Marnie63, Dec 29, 2017
    Last edited: Dec 29, 2017
    Two really big bouts of diarrhoea today - thank God the carer has been here to help me clean up both of those on the bed. I think it's all still clearing out after the constipation over Christmas and then the big doses of Laxido. Good that it's clearing, but my goodness it's hard to clean up now that we're having to work on the bed again. Of course the muscles relaxing after a stroke may be adding to that. Just hope she 'recovers' enough in the next few days for me to stand her on the rotunda again, otherwise I'm going to have to up the care calls again, which is a real bummer as I've just reduced them a little as I was coping better myself, in between them. It's the immobility and having to toilet her in bed which is the line between loads of carers, or fewer carers. And I am really, really hating too many calls, so as well as dealing with mum's dementia, the multiple calls really get to me too, but I appreciate that the calls are making the difference between me keeping mum at home, or having to consider nursing care somewhere. One of the carers pitched up last night with a stinker of a cold, so I've told the agency that if anyone turns up with so much as a sniff, they will be sent away.

    Not feeling good today, head splitting. As the title of one of our popular threads says, I really have had enough of this .....

    Thank you all for your support, as ever.
     
  14. Tin

    Tin Registered User

    May 18, 2014
    4,826
    UK
    That's exactly what happened to mum after constipation and a few days on Laxido, then so much and so fast. Right thing to turn away any sniffling carers. Just before Christmas and having one visitor with the remnants of a cold I posted on my Facebook account for anyone with the slightest sniff or cough to stay away from my house and that because I was mum's main carer neither of us could go down with a cold. They stayed away!

    How on earth are you coping with turning your mum to wash and change her?
     
  15. Amy in the US

    Amy in the US Registered User

    Feb 28, 2015
    4,623
    USA
    Oh, Marnie, no, I'm so sorry to hear about this.

    You must be so tired. I can't even imagine.
     
  16. Marnie63

    Marnie63 Registered User

    Dec 26, 2015
    1,600
    Hampshire
    I've had the carer here to help me with two changes and washes today Tin (our regular one fortunately, she's been with us from the start, very good, very hard worker), and next call is due at eight thirty this evening - I might be lucky and not have to do any on my own today! I can do it, but it's hard with all the rolling and running back and forth around the bed. I was so pleased as we had 'moved on' from that stage with mum being able to walk again with a frame, but we're back to square one now it seems.

    Just called doctors to check if someone is coming, and got an apology as it seems someone did not put the message on the right screen - today is definitely turning out to be a not so good day!

    Tomorrow I just have evening calls as I had reduced the visits down due to mum's mobility returning, and even they were in jeopardy as it was due to be the carer with the heavy cold, who I have asked to stay away until she's fit. But, the agency have found two others to fill the slots, and they are both regulars. It will be easier once the diarrhoea has gone, but of course I don't know if that may be due to mum now being in a different state physically?

    Please, please let me at least be able to stand her so that I can change her and wash her.
     
  17. Tin

    Tin Registered User

    May 18, 2014
    4,826
    UK
    99.9% sure that diarrhoea is down to Laxido, at least that is how it has been with my mum At one point I went through a weeks supply of pads in 2 days! I put mum to bed wearing a long sleeve top only, with the usual amount of pads and knickers and gaffer taped a few disposable sheets to her bed.

    Is your mum's arm a little more mobile now? I suppose like us there will be no gp visits over the weekend.
     
  18. Marnie63

    Marnie63 Registered User

    Dec 26, 2015
    1,600
    Hampshire
    Yes Tin, it must be the mega dose of Laxido that was given over the two days to clear the constipation/impactation. I did think that there was very little coming out, compared to what went in, well, it's coming out now!

    Just dealt with bout 3 of the day on my own. The sheet and mum's nightie are a bit wet in places but will have to wait for the 8.30pm call as cannot do it myself. Doc called and said there is nothing to be done re the stroke (which I expected), but has prescribed a 'gentler' antibiotic for me to have for use for any future urine infections. Wish someone had prescribed this originally!

    I will try again tomorrow morning to see if mum can sit up in bed and perhaps stand on the rotunda with my help, using her right arm. No idea how this stroke has affected her left leg yet.

    Head really pounding now!!!
     
  19. Tin

    Tin Registered User

    May 18, 2014
    4,826
    UK
    Time to take your own pain killers now Marnie.
     
  20. Marnie63

    Marnie63 Registered User

    Dec 26, 2015
    1,600
    Hampshire
    I know!!!
     

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