Thinking of you so much especially because my husband is exactly the same in most ways. The only thing he does outside the house now is to very occasionally have a short stroll around the garden, or I take him to the barbers. He too is so thin, skin and bone but miraculously he doesn’t have any bed sores yet. Scrambled eggs are still ok, but he wouldn’t eat a whole one if I didn’t keep encouraging him. That’s the hardest thing, he looks at his plate and looks sad and says he can’t eat that, every single time. So the chat with the dietician was helpful because there isn’t much benefit in putting a plate in front of him, so drinks, finger food and little dishes of sweet things are the way to go. It’s just hard hitting these milestones of decline instead of enjoying a meal together. I think our daughter feels exactly the same as you do. She looked after him last Saturday and found the feeding very soul destroying. I am beginning to feel quite paralysed by this disease, and find it increasingly difficult to motivate myself to do anything. I do keep going though and still try to have a decent walk every day.He sounds just like dad @Grahamstown although dad can still manage scrambled egg with extra cream, I make it so runny it is almost a liquid. High calorie chocolate mousses but only one at a time now. Previously he would eat 3 in one go if I offered them, now it's a struggle to eat one. Yes I have upped the shakes again, fortunately we have a stash from when he was eating rather well.
This time last year it was shepherds pie and all sorts of good things,
So similar, just about mobile with his frame and still continent, thank god. Been out of bed for half an hour and now asleep in the chair so at least I can go and do his bit of shopping because he is not going to move.
I have more or less forgotten about the cancer now, it seems irrelevant.
It's dad's appearance that I find hardest, he has shrunk so much and is so bent with his frame.
We have monthly phone calls from the hospice to check on dad and I always say he is doing okay but he is declining. I feel like time has slowed down and everything is passing me by and I know this can go on and on. For such a weak and sick man he is very strong somehow to keep going like he does.
I may weigh him this afternoon.