1. said

    said Registered User

    Jul 4, 2006
    We are going to be launching our new website at the beginning of November.

    As part of that process we have taken a look at the people who currently use it and it is clear that many are new to dementia and new to the Alzheimer's Society.

    The new site should be a lot clearer to navigate with a clearer menu structure and a search engine that works :rolleyes: but we also want to offer people an A-Z of key terms people might come across when first researching dementia following a diagnosis.

    This could then link to other information we have on the site.

    So for example under A we could have

    • Alzheimer's

    but also

    • Alcohol
    • Aluminium


    The plan is to get all your suggestions reviewed by Clive Evers our Director of Knowledge Management who will make the final decision as to which key terms we go with.

    So if you have some time, have a think about it and help the web team build a better website.

    All the best

    (Website Manager)
  2. Brucie

    Brucie Registered User

    Jan 31, 2004
    near London
    Clever, Said - a variant of Margarita's Name Game.. :)

    Seriously though, a good idea.

    Are the following along the right lines?

    Behavioural challenges

    Care homes
    Continuing Care

    Day Centres

    Early Onset




    Memory Test






    Young Onset
  3. KenC

    KenC Registered User

    Mar 24, 2006
    Co Durham
    Dear Said.

    Well done Said,

    This sounds absolutely brilliant, while I appreciate that you are just starting and that there is a long way to go, I am sure that there are enough people here to give you the inspiration that you need.

    We seem to have a brilliant cross section which would be very hard to get anywhere else.

    Good Luck

  4. jenniferpa

    jenniferpa Volunteer Moderator

    Jun 27, 2006
    Said, when you mention a search engine that works, will it be able to cope with short words? Searching for PEG or EPA for example is an exercise in futitlity currently.
  5. Cate

    Cate Registered User

    Jul 2, 2006
    Newport, Gwent
    Just a couple of suggestions:


  6. Margarita

    Margarita Registered User

    Feb 17, 2006
    #6 Margarita, Sep 24, 2007
    Last edited: Sep 24, 2007
    what would also be helpful and that why I use goggle search engine , is when I put the wrong spelling in it say '' Do you mean '' and go on to give me the right spelling leading me to the right link . have seen it done on only on a few medical web site search engine

    where other main search engine don't do that .

    link to all about spiral awareness

    add that to the S please :D
  7. CraigC

    CraigC Registered User

    Mar 21, 2003
    thanks for asking!

    Care Choices
    Council Tax Exemption
    Huntington's disease
    Multiple sclerosis
    NHS (Funded Care)
    Lewy (Boddies)
    Paying (for Care)
    Parkinson's disease
  8. Sandy

    Sandy Registered User

    Mar 23, 2005
    Hi Said,

    Might be interesting to run a textual analysis of the last 1-2 years' posts on TP and see what the top 100 words are. This isn't as good as the direct input from TP Members regarding what they would like to see included on an A-Z, but it would be interesting.

    Also, can you analyse what search terms are most frequently requested on TP, within the main Society site and also via referring search engines? That might be another source of ideas.

    The makeover of TP looks brilliant, but please can you consider moving away from using fixed-size fonts in the CSS (not very WAI-friendly)?

    Many thanks,

  9. Skye

    Skye Registered User

    Aug 29, 2006
    SW Scotland
    Brilliant idea!

    Carers' assessments
    'Going home' / 'sundowning'
    Primary Progresive Aphasia
    Social Services assessments
    Spatial awareness (I think that's what Maggie means)
  10. Tender Face

    Tender Face Account Closed

    Mar 14, 2006
    NW England
    Hi Said - brilliant!!!! Two thoughts:

    1) 'J' for 'Jargon'!!!!! Glossary of abbreviations (you may have seen Cliff has already identified that need and started work on that in the Tea Room!;) ). I didn't have a clue what a CPN or EPA was when I first joined TP - or even if there was any difference between them! :eek:

    2) I would like to think 'W' for 'Worried?' was included ...... I am sure many, many people - like I did - first come to TP when there are simply concerns - and a 'suspicion' of any form of dementia - and don't even know how to go about getting a diagnosis or how best to secure help and presenting information when approaching GPs or other sources of support .....

  11. Margarita

    Margarita Registered User

    Feb 17, 2006
    #11 Margarita, Sep 24, 2007
    Last edited: Sep 24, 2007
    Ok you did ask

    How about a 3D [ three dimensions ] program of the brain showing what happen to the brain when someone has AZ showing the changes explaining those complicated names that the disease destroy coursing the symptoms .

    Just that when I was new to AZ I could not understand how a disease call AZ could give my mother so many negative symptoms , I did have to read a lot about it , but I am a very visual person , did find a kind of program like that , but only on the web site of exbiza , but then that was just showing how the medication helps , not what happen in the brain to course the disease . 3D would bring it more up to date . Just my thought on it

    thanks hazel that the right spelling
  12. TinaT

    TinaT Registered User

    Sep 27, 2006

    Just read a post with some very good advice regarding someone who is worried about respite care charges made by a LA. I think it would be wonderful if the newly revampled TP site could have a place where we can go to check on these things without posting.

    Also good advice about what are the usual 'steps' which are the 'norm' when someone is diagnosed. ie., what benefits to claim, what are the usual procedures regarding getting a social worker, care assessment, and other necessary things. As my husband was diagnosed when well into the stages of AZ, I was completely at a loss as to what to do. It took me months of reading through TP postings to get a glimmer of what was 'normal' beurocratic procedures necessary to get the help I needed. xx TinaT
  13. Margarita

    Margarita Registered User

    Feb 17, 2006
    #13 Margarita, Sep 24, 2007
    Last edited: Sep 24, 2007
    Right as you all know does not take a lot to confuse me :confused:

    Are we taking about launching a new website on the main home page ?

    Or are you launching a new TP website Said ?

    As I thought it was the main home page of Alzheimers Society :eek: site web page that was getting a new look
  14. Brucie

    Brucie Registered User

    Jan 31, 2004
    near London
    Hi Margarita

    as I understand it, the process is:

    - TP changes to new colours, the first part of the AS website to do so. [this has happened, as we know]

    - October TP changes format to be simplified

    - November 5th the main AS web pages convert to new colours.

    Said will no doubt confirm - or correct my understanding...

    I'm not sure when the A-Z appears...:confused:
  15. Norman

    Norman Registered User

    Oct 9, 2003
    Birmingham Hades
    #15 Norman, Sep 24, 2007
    Last edited: Sep 24, 2007
    Like this?

    Aggression verbal
    Aggression physical
    Attendance allowance
    Admiral nurses

    community Matrons
    Community assessments

    Direct Payments
    Dental Health
    Duty Social worker

    Fair charging

    Hospice at Home


    Mental Health act

    Palliative Care
    Penderels Trust

    Social worker

  16. Petrus

    Petrus Registered User

    Aug 7, 2007

    1. Some words: Aggressive AD, Rapid On-set AD, Prognosis, ID tags, NICE, NICE guidelines, National Audit Office Report, CSCI Reports
    2. Would be worth your compiling word suggestions you have so we can look for holes in the list
    3. The US Alzheimer's Association has the brain tour mentioned above ( you could hotlink, I guess); there is an even better one on the US Public Broadcasting Service site (PBS.org) as part of their brilliant site on Alzheimer's ("The Forgetting"). There is also excellent info. on the Mayo Clinic site in their Alzheimer's Center.
  17. said

    said Registered User

    Jul 4, 2006
    Thank you everyone. Lets keep them coming.

    Petrus I will compile words/search terms that have been suggested on this thread later today.
  18. Cliff

    Cliff Registered User

    Jun 29, 2007
    North Wales
    Have listed a number of abbreviations which you may find useful

    AKA - also known as
    CAT - computer aided tomography – xray examination of the body displayed as sections
    C. Diff or maybe CD - clostridium dificile
    CD - Chronic diarrohea - yellowish brownish, and very loose take precautions if in contact
    CPN - community psychiatric nurse
    CSCI - commission for social care inspection
    CVA - cardio vascular accident
    DN – District Nurse
    DV - Deo volente/ Dieu Voeux/God willing
    DVLA - driver and vehicle licencing authority ( at request of an Australian lady)
    EMI - elderly mentally infirm
    ECG - electro cardio gram
    EEG - electro encephlogram=Electrodes attached to the brain to monitor brain activity
    EMU - elderley mobility unit - a ward that the elderley are taken if a break is suspected
    EPA - enduring power of attorney
    FIL/MIL - Father/Mother in law
    LA - local authority/the council
    LFT - Liver Function Test
    MRI scan - scanning with magnetic resonance imaging
    MRI - Manchester Royal Infirmary
    MRSA -- methicillin resistant Staphylococcus aureus
    MSU - Midstream Sample of Urine
    MI - multple infarction
    PA - power of attorney
    PCT -Primary Care Trust/ local health authorities now
    PEG - percutaneous endoscopic gastrostomy = a feeding tube is inserted directly into the abdomen
    PICU - psychiatric intensive care unit
    - in the USA and Oz, pediatric intensive care unit
    POV - point of view
    SW - Social Worker
    TFT - Thyroid Function Test
    TIA - Transcient ischaemic attack. (Brief episode of shortage of blood to the brain).
    TTTP - They take the P***.I wonder how many forum members have thought this of GP's
    UTI - urinary tract infection.
    U&E's - Ureas&Electrolytes=testing for potassium levels
    U&E's - Ureas & Electrolytes=testing for potassium levels
    LFT - Liver Function Test
    TFT -Thyroid Function Test
    MSU - Midstream Sample of Urine
    TIA - Transcient ischaemic attack. (Brief episode of shortage of blood to the brain)

    Everything here is given in good faith with NO medical knowledge on my part.

    Best wishes
  19. Margarita

    Margarita Registered User

    Feb 17, 2006
    Thank- you Petrus for telling us about that , its really good just what I was looking for
  20. Nell

    Nell Registered User

    Aug 9, 2005
    May I suggest cross referencing too? Such as DRIVING under "D" and also LICENCE - DRIVERS under "L"??

    There are times I look for things apparently in vain, only to find it WAS there but not under the term/s I used to find it. (Not on TP - when I'm searching other things - such as the Phone book!!)

    Think this is a GREAT idea! Well done!

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