I visited Mum at the weekend, she has the second urine infection in a month and has eaten very little over the last month or so, but remains relaxed and smiley most of the time.
Since the galantamine was withdrawn last autumn, she has lost most of her speech and seems to understand little of what is said to her, but is mobile, though slower than she was.
Her main carer asked me to try to get her to take her medication as she is refusing that too, I eventually got her to take the liquid antibiotic, but it took ages. I took the medication pot and glass into the office and her carer said "don't be surprised if she gives up soon." I said I hoped she would and immediately realised what a hard and awful thing that was to say out loud.
The carer was not phased, but said she could totally understand my feelings,she has been in the situation herself.
I love my Mum to bits, but don't want her go on getting more frail with every week that passes, she deserves better than that. I don't want her to die either, but there are no more options left are there?
How I hate this disease, it gets the sufferer and the loved ones alike.
Kathleen
Since the galantamine was withdrawn last autumn, she has lost most of her speech and seems to understand little of what is said to her, but is mobile, though slower than she was.
Her main carer asked me to try to get her to take her medication as she is refusing that too, I eventually got her to take the liquid antibiotic, but it took ages. I took the medication pot and glass into the office and her carer said "don't be surprised if she gives up soon." I said I hoped she would and immediately realised what a hard and awful thing that was to say out loud.
The carer was not phased, but said she could totally understand my feelings,she has been in the situation herself.
I love my Mum to bits, but don't want her go on getting more frail with every week that passes, she deserves better than that. I don't want her to die either, but there are no more options left are there?
How I hate this disease, it gets the sufferer and the loved ones alike.
Kathleen