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Alzheimer's registered blind limited hearing

Dude66

New member
Aug 10, 2020
4
0
Hi to you all. My mom who is 96 years old was only diagnosed with alzheimer's 6 weeks ago although we have known for a while that something was wrong. She had a fall on the 31st May and broke her hip resulting in a partial hip replacement. Whilst she was in hospital they did a brain scan which showed age related alzheimer's. My mom came out of hospital the day after her diagnosis and as we hadn't been able to see her for 5 weeks because of covid-19 were shocked at the change in her. Mom came out of hospital a totally different person. Me and my 2 sisters now give her 24/7 care as she can't walk unaided. To make things even worse is the fact that she is registered blind and she has limited hearing. I've looked and read a lot about alzheimer's but I can't find anything to help us or anyone else who is dealing with all 3 things that mom's got and the only help we get is 30 minutes care for her bathing and dressing. Any help or advice you can give me would be greatly appreciated. Thanks
 

karaokePete

Registered User
Jul 23, 2017
5,663
0
N Ireland
Hello @Dude66, you are welcome here and I hope you find the forum to be a friendly and supportive place.

That is a very difficult situation and the only thing I can think of is suggesting that the GP may be able to help with referrals to specialists. In the hope that there may be something of benefit I'm putting links to the AS Publications list and the page where a post code search can be done to check for support services in ones own area. If you are interested in these, clicking the following links will take you there

https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list

https://www.alzheimers.org.uk/find-support-near-you

You will see that there are Factsheets that will help with things like getting care needs assessments, deciding the level of care required and sorting out useful things like Wills, Power of Attorney etc., if any of that hasn't already been done. There is also a Dementia Guide in the list.

Now that you have found us I hope you will keep posting as the membership has vast collective knowledge and experience so you will get support, and, I hope, the benefit of some experience
 

Pacucho

Registered User
Dec 20, 2009
550
0
Wembley, Middlesex
Hello Dude66,

I see you have already received good advice.

Also, you may not be aware that other organisations provide advice specifically tailored to the situation you find yourself in. If you simply look on the internet for "dementia, blind and deaf services" you will find a range of resources including the following: RNIB and DLF.
Hope this helps,

Paco
 

mowood

Registered User
Dec 27, 2009
374
0
West Yorkshire
Hello Dude66,
I was in a similar position some years ago. My mum who was totally blind and very hard of hearing was diagnosed with vascular dementia. There was little understanding of the difficulties we faced and even less support from the pct or social services. There was no support at all from RNIB. I contacted a charity called SENSE that supports deaf- blind people and they helped me to deal with the pct. I also received some support and advice from an Admiral nurse. If you have an Admiral nurse in your area I would recommend that you get in touch with them as soon as you can. I'm sorry that you and your sisters are having to deal with this very difficult situation and just wanted to say I know what you're going through. With all good wishes.
 

Dude66

New member
Aug 10, 2020
4
0
Hello Dude66,
I was in a similar position some years ago. My mum who was totally blind and very hard of hearing was diagnosed with vascular dementia. There was little understanding of the difficulties we faced and even less support from the pct or social services. There was no support at all from RNIB. I contacted a charity called SENSE that supports deaf- blind people and they helped me to deal with the pct. I also received some support and advice from an Admiral nurse. If you have an Admiral nurse in your area I would recommend that you get in touch with them as soon as you can. I'm sorry that you and your sisters are having to deal with this very difficult situation and just wanted to say I know what you're going through. With all good wishes.
Thank you for this reply. Any help or advice is welcome
 

Dude66

New member
Aug 10, 2020
4
0
Hello Dude66,
I was in a similar position some years ago. My mum who was totally blind and very hard of hearing was diagnosed with vascular dementia. There was little understanding of the difficulties we faced and even less support from the pct or social services. There was no support at all from RNIB. I contacted a charity called SENSE that supports deaf- blind people and they helped me to deal with the pct. I also received some support and advice from an Admiral nurse. If you have an Admiral nurse in your area I would recommend that you get in touch with them as soon as you can. I'm sorry that you and your sisters are having to deal with this very difficult situation and just wanted to say I know what you're going through. With all good wishes.
Thanks for taking the time to help me. Much appreciated
 

Dude66

New member
Aug 10, 2020
4
0
Hello Dude66,
I was in a similar position some years ago. My mum who was totally blind and very hard of hearing was diagnosed with vascular dementia. There was little understanding of the difficulties we faced and even less support from the pct or social services. There was no support at all from RNIB. I contacted a charity called SENSE that supports deaf- blind people and they helped me to deal with the pct. I also received some support and advice from an Admiral nurse. If you have an Admiral nurse in your area I would recommend that you get in touch with them as soon as you can. I'm sorry that you and your sisters are having to deal with this very difficult situation and just wanted to say I know what you're going through. With all good wishes.
Thanks for the reply. What's an admiral nurse.
 

Louise7

Registered User
Mar 25, 2016
2,741
0
@Dude66 Admiral nurses can provide community support to those with dementia and their families. They don't cover all areas but are a useful resource. Here's a link to their website which explains more about what they do, and there's a search facility to find out if there is a nurse in your area: https://www.dementiauk.org/