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14 years Izzy! Do you mind my asking what the diagnosis is for your OH? ie what sort of dementia? How have you coped all that time?My husband's diagnosis was almost 14 years ago and he's still at home with me. I try hard to make the best of every day. Sometimes it can be easier than others.
Like Izzy, I care for my husband at home, (13 years on from diagnosis of Alzheimers' in our case.)14 years Izzy! Do you mind my asking what the diagnosis is for your OH? ie what sort of dementia? How have you coped all that time?
I looked after John for nearly 12 years from diagnosis, but spent the last 2 years, sleeping on a 2 seater settee, opposite the kitchen door. I live in a bungalow, but that way, I was alerted when John switched the kitchen light on, and started his midnight "cooking". In his case, it meant lighting the burners and putting tea towels on them, followed by fires.Like Izzy, I care for my husband at home, (13 years on from diagnosis of Alzheimers' in our case.)
I think Izzy would agree that we (and others) are fortunate compared to some in that our spouses are easy-going, and placid, accepting of care and able to be looked after comparatively easily.
That's not to say it is not a 24/7 commitment, and neither is it any less heart-breaking to lose the support and companionship of a loved one, but when the person with dementia is less demanding it does make life easier and keeps open possibilities such as holidays, respite, moving home etc. that are unthinkable for many who have lived with the condition for far less time.
Reading some of the posts on here my heart goes out to those whose loved ones have challenging behaviours and disruptive sleep patterns, and I am grateful every single day that in our case this has not been so severe.