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Alzheimer's has a lot to answer for

teetoe

Registered User
Mar 10, 2016
78
NSW, Australia
My husband's diagnosis was almost 14 years ago and he's still at home with me. I try hard to make the best of every day. Sometimes it can be easier than others.
14 years Izzy! Do you mind my asking what the diagnosis is for your OH? ie what sort of dementia? How have you coped all that time?
 

sleepless

Registered User
Feb 19, 2010
3,223
The Sweet North
14 years Izzy! Do you mind my asking what the diagnosis is for your OH? ie what sort of dementia? How have you coped all that time?
Like Izzy, I care for my husband at home, (13 years on from diagnosis of Alzheimers' in our case.)
I think Izzy would agree that we (and others) are fortunate compared to some in that our spouses are easy-going, and placid, accepting of care and able to be looked after comparatively easily.
That's not to say it is not a 24/7 commitment, and neither is it any less heart-breaking to lose the support and companionship of a loved one, but when the person with dementia is less demanding it does make life easier and keeps open possibilities such as holidays, respite, moving home etc. that are unthinkable for many who have lived with the condition for far less time.
Reading some of the posts on here my heart goes out to those whose loved ones have challenging behaviours and disruptive sleep patterns, and I am grateful every single day that in our case this has not been so severe.
 

Izzy

Volunteer Moderator
Aug 31, 2003
63,237
69
Dundee
Sorry. I just saw your post teetoe. He has a diagnosis of Alzheimer's. I agree with everything sleepless has said.

I'm lucky enough to live in Scotland where, at the moment, I can get funded care for him through the free personal care for the elderly scheme. I choose to use my hours Monday to Friday and take no Carers at the weekends. I don't know how I would cope now without that. It's much harder now than it was 5 years ago, indeed even a year ago. It's still exhausting and some days are harder than others. I know I'm much more fortunate than others.


Sent from my iPhone using Talking Point
 

Scarlett123

Registered User
Apr 30, 2013
3,802
Essex
Like Izzy, I care for my husband at home, (13 years on from diagnosis of Alzheimers' in our case.)
I think Izzy would agree that we (and others) are fortunate compared to some in that our spouses are easy-going, and placid, accepting of care and able to be looked after comparatively easily.
That's not to say it is not a 24/7 commitment, and neither is it any less heart-breaking to lose the support and companionship of a loved one, but when the person with dementia is less demanding it does make life easier and keeps open possibilities such as holidays, respite, moving home etc. that are unthinkable for many who have lived with the condition for far less time.
Reading some of the posts on here my heart goes out to those whose loved ones have challenging behaviours and disruptive sleep patterns, and I am grateful every single day that in our case this has not been so severe.
I looked after John for nearly 12 years from diagnosis, but spent the last 2 years, sleeping on a 2 seater settee, opposite the kitchen door. I live in a bungalow, but that way, I was alerted when John switched the kitchen light on, and started his midnight "cooking". In his case, it meant lighting the burners and putting tea towels on them, followed by fires.

He would also wake me, several times, every night, and ask what time the plane was, if I was "with child", why were other people in his "ward" (his bedroom), and, of course, his favourite question "is it Thursday?". But his double incontinence and violence only became a problem in the last few months, whereas some poor folk on here have experienced both those in a relatively short time, since diagnosis.

I was also fortunate that I could afford to pay for a few hours at a Day Centre, every day except Sunday, which meant I could have a sleep. Without that little break, I don't think I'd have lasted the course.
 

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