Dear Friends,
Has anyone read the Daily Mail article of yesterday 2 Feb, with respect to Barbara Pointon's landmark victory to force the Cambridgshire NHS to pay for her husband's care fees.
According to the report by Jenny Hope [what a great name..] Barbara's husband was diagnosed with AD 12 years ago and given 7 years to live. She had to take early retirement from her teaching post to care for husband Malcom [also a teacher - here we go again on the teacher routine....] Due to her daily care and support for her husband at home, he is still as well as could be expected, having survived 5 years longer than the prognosis from the medical profession.
After years of battles, Barbara finally made a complaint against the Cambridgeshire Health Authority which has been upheld by the Ombudsman and her husband will now receive 100% NHS care at home at £1000 per week.
Further - and most importantly ....
'The ruling means that other NHS Trusts will have to follow suit or risk being investigated by the Ombudsman...'
I have emailed Jenny Hope at j.hope@dailymail.co.uk firstly to offer my thanks for her article and also to request her to pass on my personal thanks to Barbara Pointon for her untiring devotion and diligence in securing a landmark victory for her husband and indeed, all AD suffers. Will you PLEASE ALL DO THE SAME?
This brave woman has set a precident for laws to be changed as soon as possible. We need to lobby MP's, media and follow this up rapidly. Barbara is quoted as saying 'I fought for the principle, not the money and I hope other people can benefit as a result.' Absolutely - there is no money available that could possibly recompense our loved ones for the loss of the quality of their lives or their memories. The issue is purely, as I see it - please give us some funding and support so that our parents, spouses and families can continue to provide ongoing care AT HOME where it is most desperately needed and where AD suffers are loved and feel most secure.
I'm sure Jenny Hope will pass on all messages, especially if she is indundated with emails.
What can we all do next? Lobby our local NHS and contact the Ombudsman to ensure that all AD suffers can now expect similar help. Maybe the AD Society has a point of view and can help too.
Best wishes to all,
Jude
Has anyone read the Daily Mail article of yesterday 2 Feb, with respect to Barbara Pointon's landmark victory to force the Cambridgshire NHS to pay for her husband's care fees.
According to the report by Jenny Hope [what a great name..] Barbara's husband was diagnosed with AD 12 years ago and given 7 years to live. She had to take early retirement from her teaching post to care for husband Malcom [also a teacher - here we go again on the teacher routine....] Due to her daily care and support for her husband at home, he is still as well as could be expected, having survived 5 years longer than the prognosis from the medical profession.
After years of battles, Barbara finally made a complaint against the Cambridgeshire Health Authority which has been upheld by the Ombudsman and her husband will now receive 100% NHS care at home at £1000 per week.
Further - and most importantly ....
'The ruling means that other NHS Trusts will have to follow suit or risk being investigated by the Ombudsman...'
I have emailed Jenny Hope at j.hope@dailymail.co.uk firstly to offer my thanks for her article and also to request her to pass on my personal thanks to Barbara Pointon for her untiring devotion and diligence in securing a landmark victory for her husband and indeed, all AD suffers. Will you PLEASE ALL DO THE SAME?
This brave woman has set a precident for laws to be changed as soon as possible. We need to lobby MP's, media and follow this up rapidly. Barbara is quoted as saying 'I fought for the principle, not the money and I hope other people can benefit as a result.' Absolutely - there is no money available that could possibly recompense our loved ones for the loss of the quality of their lives or their memories. The issue is purely, as I see it - please give us some funding and support so that our parents, spouses and families can continue to provide ongoing care AT HOME where it is most desperately needed and where AD suffers are loved and feel most secure.
I'm sure Jenny Hope will pass on all messages, especially if she is indundated with emails.
What can we all do next? Lobby our local NHS and contact the Ombudsman to ensure that all AD suffers can now expect similar help. Maybe the AD Society has a point of view and can help too.
Best wishes to all,
Jude