1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

  1. Cherryade

    Cherryade Registered User

    Jul 27, 2015
    54
    We are awaiting a diagnosis of dementia for my friend who is 58 years old. I am very concerned as she lives on her own and has no family. And only a few friends, none of whom know each other. What on earth can I do to help? I feel devastated at the potential diagnosis but looking back over the past 3 years, it should not have come as such a shock. Is there any help out there for her? Who will look after her well-being? She is very scared about the future. I live north of the border if that makes a difference to available support.
     
  2. Izzy

    Izzy Volunteer Moderator

    Aug 31, 2003
    59,595
    Female
    Dundee
    Hello Cherryade and welcome to TP. I'm another one from north of the border!

    It's so good that your friend has you to think of her. I'm glad you found TP as I'm sure you'll find it helpful and in turn that will help your friend.


    Do you think your friend would allow to go along to support her when she goes to the GP etc? I'm sure that will be of great help to her.

    Once she has a diagnosis she will be entitled to a year's post diagnisis support. It is explained in this page from the Alzheimer Scotland website -

    http://www.alzscot.org/campaigning/five_pillars

    Again it would be useful if you could be present when your friend meets with the post diagnostic team worker. I have found Alzheimer Scotkand to be a great help. I hope you and your friend do too.
     
  3. Cherryade

    Cherryade Registered User

    Jul 27, 2015
    54
    Well I have just been with my friend for a cat scan. Will that give a definitive answer or is there more tests to do?
     
  4. Izzy

    Izzy Volunteer Moderator

    Aug 31, 2003
    59,595
    Female
    Dundee
    In my husband's case the scan was a part of a process of tests and investigations. At the end of these we got the diagnosis of dementia of the Alzheimer's variety. I would imagine your friend will have a few tests as well before a diagnosis is given.

    Perhaps you would find this Factsheet helpful -

    http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=260
     
  5. patsy56

    patsy56 Registered User

    Jan 14, 2015
    840
    Fife Scotland
    Hi Cherryade, and welcome to TP, I'm another Scot....you will find much needed help and advice here and maybe a friend or two to share.
     
  6. marionq

    marionq Registered User

    Apr 24, 2013
    5,860
    Female
    Scotland
    From another Scot - I found Alzheimer Scotland a great source of information and encouragement. In the early days after diagnosis the Link worker and later the CPN were also most helpful. Tell your friend to take up every offer even if at the moment she feels she doesn't need it. The contacts you make in the early stages can be really useful when things get tough at a later date.

    Now at a mid/early late stage with my husband I do call on these people for advice as new social workers don't really know us from the early days and only see John as he is now.

    I'm glad your friend has you. Well done.
     
  7. Moray05

    Moray05 Registered User

    Aug 20, 2015
    3
    Central Scotland
    Hi cherryade
    Another scot here, usually the scan is the last thing to happen to ensure nothing else is wrong which means if not, diagnosis will be some form of dementia. Encourage your friend to get involved with as many organisations as poss to keep her socially involved, even at this early stage (will help in long run), CPN will advise on these in her area. She's lucky to have you, take care xx
     
  8. Cherryade

    Cherryade Registered User

    Jul 27, 2015
    54
    Thank you all so much. I did find the fact sheet very helpful. I guess we are at the start of a long and scary road. I have just been very worried at the fast rate of change in her in the past 6 months. If it continues at this rate I am not sure she will be able to be independent so what happens then? That is a bridge to be crossed in the very distant future I hope.
    Thanks again.
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.