Please can you offer and advice please.
I used to come on here about my dad sometime ago who has multi-infarc dememtia and other health issues but due to my own health (I have Fibromyalgia and ME/CFS) and am very poorly still.)
My mum who is my dads carer 24/7 also had health problems. She has Crohns disease and also early stages of COPD.
Well the past year dad has gone down hill but still knows his immediate family but not much else anymore and needs watching all the time.He often looses his memory for hours on end but mum sits patiently with him and it usually returns.
The past year we have had respite for dad once a week for every four weeks so mum can recharge her batteries and rest as she is shattered by then.
Now yesterday social services have cut dads respite (even though he has deteriorated) to every six weeks and more or less will not budge. All this has made mum very very ill and we don't know where to turn anymore for help.
We know this is all down to costing and that they couldnt care a less about the carer's. I could write a book here on them.!!!
Mum does have a lady who does her shopping and also their laundry and meals on wheels but no-one see's how mum and dad cope when the door closes and mum almost collapses with the strain of things.
Dad is still in our view not bad enough for full time care but we don't think its a long way off.
I feel so helpless and useless as can't help either and this is making my own health worse.
Any advice as to what we could or should do would be most grateful.
Julie.
I used to come on here about my dad sometime ago who has multi-infarc dememtia and other health issues but due to my own health (I have Fibromyalgia and ME/CFS) and am very poorly still.)
My mum who is my dads carer 24/7 also had health problems. She has Crohns disease and also early stages of COPD.
Well the past year dad has gone down hill but still knows his immediate family but not much else anymore and needs watching all the time.He often looses his memory for hours on end but mum sits patiently with him and it usually returns.
The past year we have had respite for dad once a week for every four weeks so mum can recharge her batteries and rest as she is shattered by then.
Now yesterday social services have cut dads respite (even though he has deteriorated) to every six weeks and more or less will not budge. All this has made mum very very ill and we don't know where to turn anymore for help.
We know this is all down to costing and that they couldnt care a less about the carer's. I could write a book here on them.!!!
Mum does have a lady who does her shopping and also their laundry and meals on wheels but no-one see's how mum and dad cope when the door closes and mum almost collapses with the strain of things.
Dad is still in our view not bad enough for full time care but we don't think its a long way off.
I feel so helpless and useless as can't help either and this is making my own health worse.
Any advice as to what we could or should do would be most grateful.
Julie.
