Oh Gwyneth you express it so clearly. Decision making is all mine now. I met Mick when I was 18 so he has been part of my entire adult life. The move from wife and partner to carer is hard to believe, understand or accept and I think you are feeling the same. In a funny way it does help to know others share the experiences this illness throws at us as it means others understand what is really hard to explain. Keep posting. It's good to be able to talk to you. Trisha
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I agree with you Trisha, that somehow it really does help to know you are not alone. Thank you for sharing your thoughts with me. I do feel for you having been together for such a long time. I have been married 30 years, we married aged 40 (me) and 45 and fortunately have had a very exciting and fulfilling life up to this wretched condition kicking in probably about 5 years ago if I am honest. Things have got worse but we still manage to keep going and hope the wolf keeps at bay for as long as possible. When we have a good spell I sort of kid myself it is really not so bad until we then have a real run of things spiralling downhill. The advice from the AS is really helpful and I keep reading the dos and don't s over and over again. I don't know about you but when I am tired and a bit under the weather it is theny patience wears thin and I snap which makes my husband flare up at me and storm off or ignore me for hours. So out of character as he was always the peacemaker! No 2 days are ever predictable!!! I wish you a very calm new year. Gwyneth