I spoke to Helen twice yesterday . It was very difficult.
She was uncomfortable, disfluent, confused, but holding on to the phone as if for dear life, not wanting the connection to end.
She isn`t eating because she isn`t hungry and also because she has sickness and diarrhoea again . She said she doesn`t want to eat because eating produces too much waste. She said she can`t remember when she last ate. However Mandy came on the phone and said she had some mashed potato yesterday and tinned fruit in the early hours at 2am.
She had to hang up on me because of some difficulty, but phoned me back, unable to remember why she hung up.
So we chatted as best we could and all in all were on the phone for an hour before carers came and our conversation ended.
She did manage to say she was satisfied with the care she was receiving but was also able to convey she felt no benefit in being at home.
She is very tired. She said she is exhausted. She wants to sleep but keeps waking.