It's really interesting that you say that about changes to Donepezil. My Mum is also in late stages and I wondered how much of a difference it made. Also, Mummy went on Lorazepam for a while, which we all (eventually) agreed turned her into a zombie, so we stopped using it. However, I found it hard as I was expected to give a view as her advocate (and I totally accept that responsibility, though it terrifies me) but I have no clinical knowledge. We were also balancing a hoped for reduction in her asbo behaviour (hitting, kicking, spitting etc in personal care) with giving her so much medication that it in itself affected her. It is tough. And then sometimes, as you say
@Palerider, if I agree or disagree they are surprised.
She's off Lorazepam now as we finally agreed her "decline" was in some part due to the drug itself. Dementia is so complex it is like solving clues in the dark. I worry all the time have we made the right decisions, but we can only be guided by the professionals (whilst keeping a sharp eye on things) and do our best.