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Yes we are all heart broken and I can only empathise with your own situation. It is truly dreadful and at times despairing . Mum can't use the phone anynore and she can't focus on visual stuff having tried previously.@Palerider any chance they could let you see her on Skype or at least let her hear your voice on the phone? My Mum has lost her ability to communicate with language for several months now. She has been unresponsive on Skype the first 2 tries but today she started to hum Galway Bay after a couple of minutes of silent staring. I was so delighted because the humming is her way of getting my attention if I am with her but looking away. It tells me she knows I am still here even though I can't be with her. Maybe it would offer some comfort to one or both of you?
I never thought the anguish of caring for my Mum on the downward course of this disease could get any worse after deciding to move Mum into a care home three years ago. Now not having been allowed to see her for almost 4 weeks has proven otherwise .
I wish I had more to offer you. We are all heartbroken aren't we?
Wishing you strength
My Mum doesn't use the phone either, they just hold the iPad up towards her ear so she can hear my voice and I can see her. There is nothing wrong with her vision but her poor brain doesn't process visuals anymore. I once had an eye specialist explain it to me that with dementia it is like an oldtime photo developing centre, her eyes are the camera which take the pictures just fine, but when her eyes send the images to the brain for developing it is unable to process the images , so the final product is not recognizable to her.
I also thought not seeing her was sparing myself heartache, but in truth, seeing her today on Skype was no harder than going without seeing her for the last 2 weeks
It's hard not to despair but we carers have learned to just soldier on.
Trying to rally myself, the last thing mum would want is me sitting here being upset. Haven't been called yet thankfully, but its a long day when on your own, I've even taking to making fresh pitta breads for T. The surge date has shifted to around 25th April (a prediction by one of our more scientific consultants) so its carry on until it does come. I can't decide what to pack into my bag in case I have to move closer to work -seems stupid in the scheme of thingsThe audio message sounds like it could be a good idea , shame the ch have been slow off the mark with alternatives , guessing they are busy but that doesn’t help you . How did your on call day go ? Hope you are managing to get some rest . Take care .