We're currently experiencing technical issues with our newsletter software, so our Dementia Talking Point monthly updates have been put on hold for now. We hope to restart the newsletter soon.
Find out more >here<.
Hi @jugglingmum you need to read post #660, thats what my last entries relate to, I think due to my error you have missed the crucial bitI find the word 'inanimate' very cold - immobile would be better, although still not a pleasant thought.
There could be many years before your mum's wandering phase ends, and loss of mobility won't necessarily be the cause, it will be another phase.
Not sure what you deleted or if you just double posted, but just because your mum is happy in her home, doesn't mean she won't be happy in a care home.
When my mum moved to her extra care flat, it seemed like a big weight had been taken off her trying to deal with day to day living. In her house there were triggers of things she should try and do but couldn't follow through whereas in her flat much of life was taken care of for her, and she became more relaxed and happy than I had seen her for a few years.
I've read post #660 - just wasn't sure if you had deleted another post.
Sorry @jugglingmumI've read post #660 - just wasn't sure if you had deleted another post.
I think what I was trying to say is just because your mum is happy at home, it doesn't mean she won't be just as happy in a care home, I know her wish was to stay at home, but dementia doesn't follow norms of contentment.
It might be the wandering was a one off, and it might be door sensors and trackers will be enough to keep her safe.
I'm glad you've got a resolution which feels comfortable for you, as I get the feeling that trying to fit it all in is a strain on you (jugglingmum is a name I used before dementia hit, juggling my work, kids and my sport before the kids were old enough to do sport).
Healthwatch actually contacted me and wrote down and listened to my frustration being passed around from pillar to post with no end result. I told them that Dementia care needs to be fixed and the pressures on the Carers is leading to catastrophic carer breakdowns. They gave me a list of approx 30 different agencies in Dementia Care, I went thru them and found I'd spoken to all but two of them and wrote down who'd passed me to who etc. Told them that the local council 'provides' these services and pays these people for what?? My leaving note was that they are broken and that Nobody not one single service takes ownership. Left hand doesn't know what right hand has done nor do they seem to care as long as they've listed my mums name, address etc tick we did our bit and passed details.Hi @jugglingmum hope the fencing is going well.
Mum has been lucky in having alot of input from the local Memory Clinic and they were keen to continue as she is quite high funtioning. But my real issue is that all of these parties should work together and communicate as they all have some contribution they can make in helping manage someone. Instead we have a fragmented service which makes it harder for someone like me who is on their own doing the main role of carer. Why am I having to chase the the other teams, when they can just speak to each other?