A life in the day of.........................

[Big Effort]

Hi there Grannie G,

I just read about Dhiren and dry eyes....
And Craig's observation:

dad suffered from Dry eyes, I'm convinced it was the heating and lack of air circulating in the home. We used drops regularly and it helped a lot - seem to recall they had to be preservative free drops. And also cleaned dads eyes with saline solutions

Mum has chronic dry eyes, maybe 8 years or so now, and uses preservative free eye drops to keep comfortable. However conjunctivitus seems to sneak in as there are less tears to wash out bacteria, and Mum is at the stage when hygiene is not great, and we have noticed that she can have slight conjunctivitus that makes her eyes feel tender and sore and dry.

Sending you both Best Possible Outcomes. Love BE

 

[CraigC]

Sylvia,

just to correct myself
The GP made a referral (after a bit of fight) for a physiotherapists a specialist with dementia - not a OCT. She visited and showed us the exercises. Dad wasn't very mobile at the time and I was worried about muscle wastage and cramps. Another possibility is a pillow between is legs, at least at bedtime. Just a thought.x

 

[mulhuis]

Hi Sylvia,
I have been giving the crossed legs problem some thought. I have sent you a message with a name and phone number of someone I'm sure you will remember who may be able to give some advice or point you in the right direction. Might be worth asking about a physio. I seem to remember when I was a student on the assessment ward that we had people with similar problems and I recall using sheepskin between the legs to prevent pressure sores. I cannot remember whether the crossed legs issue was resolved. Hopefully this gentleman and his team may have ideas. It might also be worth leaving a message on the same number for Dr K to give you a call back for advice. At least you know he will give you an honest answer.
Terry

 

[Sue J]

Sorry to read about Dhiren's leg crossing Sylvia. As Craig says a physio should certainly be able to help and advise re. exercises. Sheepskins are good to prevent pressure sores but I would also consider making some small cushions, cotton bags filled with polystyrene beads that can be placed between his knees. Maybe different colours that are different depths so that they can gradually change the distance between his knees - like passive exercise whiche would also make active exercises easier.

I hope you get the help you need and want to help with this.
love
Sue

 

[Grannie G]

Thank you for your concern, Craig, BE and Sue.

Newer members won`t know mulhuis [ Post 14289] was Dhiren`s CPN who went on to become a friend. We were very lucky to have him and even though he is now retired he still keeps up to date with Dhiren`s progression , by logging in to TP.

His suggestion I contact a member of the NHS team who liaises with our consultant looks promising. This member of the MHT is going to see if Dhiren is entitled to see one of their therapists.

I feel cheered by this suggestion.

The person I spoke to , with a colleague, accompanied and supported us when I took Dhiren into residential care.

I wish this help and support was Standard throughout the country.


Dhiren was very quiet today, quiet and subdued. He refused lunch yesterday which was very unusual for him but ate well today.
When it was time for me to leave he said `I`ll come with you.` I haven`t heard him say that for ages.

 

[nellbelles]

Dhiren was very quiet today, quiet and subdued. He refused lunch yesterday which was very unusual for him but ate well today.
When it was time for me to leave he said `I`ll come with you.` I haven`t heard him say that for ages.

Sylvia that is a heart string moment, I don't comprehend where the occasional flash of insight comes from, but it does.

Helen x x

 

[Wolfsgirl]

I hope you manage to resolve this somehow - your determination and stamina to help your husband is admirable!

 

[Saffie]

When it was time for me to leave he said `I`ll come with you.` I haven`t heard him say that for ages.

O dear, Sylvia, that's what Dave sometimes says and I have to tell him that there's no point as I'll only be a minuten or two. He even pushes the trolley away and makes to get out of his chair but he doesn't have the strength to even pull himself forward. That's the only better thing about Dave sleeping so much - it's easier to leave. Sympathy and understanding. X

 

[Grannie G]

I tell him it`s too windy, too hot, too cold, too sunny, I`ve too much shopping to do and he`ll get fed up, etc. etc. etc.

 

[Grannie G]

Just for the record.

Dhiren collapsed at the dinner table yesterday and because I was away, the home immediately sent for the paramedics and phoned Paul.
Although he seemed to recover quickly, it was decided to take him to A&E. Paul arrived at the same time as the ambulance and had a word with the paramedic who said all obs were normal, a heart attack was ruled out, but admission to A&E was advised for further tests.
Dhiren was compliant and Paul said he was thanking everyone for helping him. He wasn`t frightened , had no idea where he was, that anything had happened or there was any cause for concern.
After blood tests had been taken he was sent back to the home and has been absolutely fine today.
Paul spoke to one of the nurses too and both the paramedic and nurse agreed the home had been cautious.

So now it`s up to me to try to find out what happened. The only thing which has not yet been ruled out to my knowledge is a stroke or TIA.

 

[nellbelles]

Sylvia

So sorry just catching up on the real world.

I hope all is well, is it really only a few hours since we were all together?

Helen x x

 

[larivy]

Sorry to hear your news Sylvia glad Dhiren feeling better Larivy

 

[jenniferpa]

Sylvia, what a terrible shock for you all. Do make sure that they check his sodium and potassium levels - I'm not sure what meds Dhiren is on, but my mother had these episodes and in most case it was one or the other of these things being out of whack (probably but not definitely due to the diuretics she was taking for her hypertension).

 

[Izzy]

Oh Sylvia I'm so sorry to read this news. I'm glad that Dhiren seems reasonably ok and hope you can find out what happened. Take care. x

 

[sunray]

scary

It is always scary for them when they are sent to hospital so I am glad Dhiren took it so well. Maybe the blood tests will show the cause? If not I hope it doesn't happen again. Especially for your peace of mind.

Sue.

 

[lin1]

OH Sylvia what an awful shock for you
I hope Dhiren is ok now

 

[winda]

So sorry that you came back to such worries about Dhiren, Sylvia. I hope the blood tests will give some idea as to what happened. At least he seems to have recovered well since.

I hope the respite has recharged your batteries ...

 

[Saffie]

I've already commented on the LA thread but I do hope that you get some insight into what exactly happened when you visit today Sylvia. I also hope that Dhiren is back to his usual self. sneding love and support. X

 

[Pollyanna]

Hi Sylvia

I hope there is nothing to be too concerned about and Dhiren is OK. It sounds like he coped with going to hospital well which is a blessing.

x

 

[2jays]

Thinking of you Sylvia. It's not a good feeling being brought back to "reality" so quickly is it? The care home and Paul are a good support to you and Dhiren, which is a comfort, I hope this blip is just that, a blip.

xx