He never spends time in the garden, and nornmally would never drop litter anywhere.
This rubbish was thrown from the back door. I could tell because the door handle was sticky.
A life in the day of.........................
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He never spends time in the garden, and nornmally would never drop litter anywhere.
This rubbish was thrown from the back door. I could tell because the door handle was sticky.
Dee cannot explain how she is when she gets stuck in the middle of a sentence.
She is unable to say more than about four words at a time now and gets very cross with herself when she is unable to say what she is thinking. Unfortunately the words she uses have no sense at all as she tries to express herself.
Her facial expressions and her hands say more than she is able to.
Oh it is a wicked disease.
She is unable to say more than about four words at a time now and gets very cross with herself when she is unable to say what she is thinking. Unfortunately the words she uses have no sense at all as she tries to express herself.
Her facial expressions and her hands say more than she is able to.
Oh it is a wicked disease.
It certainly is Cliff. I imagine the greatest loss is the loss of expressive language when you still have a thinking mind.
Love xx
Just a thought Christine:
I couldn't understand how Dee was was getting bruises on her arm until I realised the bruises coincided with the door handles.
The heights matched exactly and I watch her very carefully through doors now - no more bruising.
Dear Cliff,
You are a clever boy. I checked Peter's arm against the door handle and it did fit in with where the bruise was.
They are brilliant at the C.H. if there is anything I am concerned about they do listen and have acted on it.
Thank God they have insurance, especially when he pushed over a £2,000 t.v. (He did use to be a painter/decorator,D.I.Y. for 29 years) he kept moving stacking furniture and covering it all with table cloths.just as if he was preparing a room for decorating.
With the t.v. when he had broken it and when he could speak - kept saying fix it, fix it.
If we did not see a funny side, we would cry.
Best wishes
Christine
You are a clever boy. I checked Peter's arm against the door handle and it did fit in with where the bruise was.
They are brilliant at the C.H. if there is anything I am concerned about they do listen and have acted on it.
Thank God they have insurance, especially when he pushed over a £2,000 t.v. (He did use to be a painter/decorator,D.I.Y. for 29 years) he kept moving stacking furniture and covering it all with table cloths.just as if he was preparing a room for decorating.
With the t.v. when he had broken it and when he could speak - kept saying fix it, fix it.
If we did not see a funny side, we would cry.
Best wishes
Christine
GrannieG said:
Oh Sylvia, if it wasn't so dire you could almost smile at it. By such 'clues' do we live our lives & try to make sense of them.
Love
Last night he had a `lapse` again after dinner and slept for one hour. When he woke it took another hour for his face to clear.
During this time he told me several times how frightened he was. The decision was made, he would go back to Manchester.
Why did he want to go back to Mancheater? Because he was a burden.
Try as I could I was unable to reassure him he is not a burden. Eventually, he accepted, grudgingly, there was no-one in Manchester to look after him and he was best here with me.
He is very frightened, he thinks he is losing his mind, and in losing his mind he will be `mental`. He has no recollection of the last X number of years, he talks about the last house but one. It seems he has completely forgotten about the last house, the one we lived in from 1993-2002. His behaviour changed in 1999.
He now thinks he has had Alzheimers for years and years, as he has no recall of the last 15 years. It is a complete blank.
I try to imagine that void, and I`m not surprised he is frightened.
During this time he told me several times how frightened he was. The decision was made, he would go back to Manchester.
Why did he want to go back to Mancheater? Because he was a burden.
Try as I could I was unable to reassure him he is not a burden. Eventually, he accepted, grudgingly, there was no-one in Manchester to look after him and he was best here with me.
He is very frightened, he thinks he is losing his mind, and in losing his mind he will be `mental`. He has no recollection of the last X number of years, he talks about the last house but one. It seems he has completely forgotten about the last house, the one we lived in from 1993-2002. His behaviour changed in 1999.
He now thinks he has had Alzheimers for years and years, as he has no recall of the last 15 years. It is a complete blank.
I try to imagine that void, and I`m not surprised he is frightened.
Hi Sylvia
What you write all sounds so familiar to me.
It is one [more] of those heartbreaks of life that when we most want to be able to help them, we are least able because of their condition.
Day by day.
What you write all sounds so familiar to me.
It is one [more] of those heartbreaks of life that when we most want to be able to help them, we are least able because of their condition.
Day by day.
Sylvia, thinking of you.
I have always tried, and failed, to imagine what is going on in the mind of someone with dementia.
We would all be frightened trying to make sense through the emptiness that surrounds them. Take care now, both of you.
I have always tried, and failed, to imagine what is going on in the mind of someone with dementia.
We would all be frightened trying to make sense through the emptiness that surrounds them. Take care now, both of you.
Hello Sylvia:
It is very frightening. This morning we have experienced another 'where are we?' episode. Have you decided how long we are here for? We will stay here cos we are at home. 'What my home? Yes, but our home! Then he went on to say how awful it was when his memory was playing tricks. Now his head is in a book and he seems content again.
Like you I need to reassure D that he is not a burden! It is hard.
Take care Sylvia - day by day! Love Jan
It is very frightening. This morning we have experienced another 'where are we?' episode. Have you decided how long we are here for? We will stay here cos we are at home. 'What my home? Yes, but our home! Then he went on to say how awful it was when his memory was playing tricks. Now his head is in a book and he seems content again.
Like you I need to reassure D that he is not a burden! It is hard.
Take care Sylvia - day by day! Love Jan
Dear Sylvia
This is probably going to sound impossibly gushing but: I really do not know where you get the stamina and compassion to support everyone else when you're going through all this.
You have not only my friendship but my deepest respect.
Love
This is probably going to sound impossibly gushing but: I really do not know where you get the stamina and compassion to support everyone else when you're going through all this.
You have not only my friendship but my deepest respect.
Love
Thanks folks.
Dhiren is definitely deteriorating, but in some ways it`s a paradox, because he is easier to live with than he has been for years.
Where there was resentment there is now closeness, where there was anger there is much more peace, where there was distance there is warmth and where there was agitation there is calm.......
for most of the time. The rest of the time is manageable.
I`m lucky he has not yet lost any language, so even though the repeated questions are a pain, there are good and valued areas of communication.
It may all change tomorrow, but today is today.
Dhiren is definitely deteriorating, but in some ways it`s a paradox, because he is easier to live with than he has been for years.
Where there was resentment there is now closeness, where there was anger there is much more peace, where there was distance there is warmth and where there was agitation there is calm.......
for most of the time. The rest of the time is manageable.
I`m lucky he has not yet lost any language, so even though the repeated questions are a pain, there are good and valued areas of communication.
It may all change tomorrow, but today is today.
When will I learn?
One hour later.............
D `How far is it to Jamui?`
S `6,000 miles.`
D `No! That`s impossible.`
S `It must be. It`s in the east of India, next door to Bangladesh`.
D `I`ll go to the station as ask there.`
S `Why don`t you believe me? `
D `I thought I could go for a day out.`
S `It took us 10 hours to get to Delhi, and you`d have to go further still. You can`t go by train.`
D `How did I get here then? I came by train.`
S `You came by boat. When we went on holiday, we flew.`
D `I`m not flying. I`ll go to the station tomorrow.`
Later.........
D `I`m going for a walk.`
S `Can I come with you?`
D `What do you want to come for? You have the dinner to make.`
and off he wemt............only to return 5 minutes later because he was too cold.
But once again I spoke too soon. Sundowning is still here in all its` glory.
One hour later.............
D `How far is it to Jamui?`
S `6,000 miles.`
D `No! That`s impossible.`
S `It must be. It`s in the east of India, next door to Bangladesh`.
D `I`ll go to the station as ask there.`
S `Why don`t you believe me? `
D `I thought I could go for a day out.`
S `It took us 10 hours to get to Delhi, and you`d have to go further still. You can`t go by train.`
D `How did I get here then? I came by train.`
S `You came by boat. When we went on holiday, we flew.`
D `I`m not flying. I`ll go to the station tomorrow.`
Later.........
D `I`m going for a walk.`
S `Can I come with you?`
D `What do you want to come for? You have the dinner to make.`
and off he wemt............only to return 5 minutes later because he was too cold.
But once again I spoke too soon. Sundowning is still here in all its` glory.
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Dear Sylvia,
I am only coping with questions I cannot understand or dealing with the "other people".
You are continually coping with the same range of questions and how you do not explode, I do not know. You must have a very firm grip on yourself.
Am full of admiration,
Love to you both
I am only coping with questions I cannot understand or dealing with the "other people".
You are continually coping with the same range of questions and how you do not explode, I do not know. You must have a very firm grip on yourself.
Am full of admiration,
Love to you both
I do hope you have turned off 'automatic pilot' and you are both safely in the 'hangar' for the night.
Happy landings.
Happy landings.
Oh Sylvia: I feel I know and understand you too too well
Hope tomorrow is a good one! Love Jan
Hope tomorrow is a good one! Love Jan
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