Hello all
Had a conversation with mum's CPN today that knocked me for six, although she only articulated what I realised yesterday when I had a message to say mum's tabs were being reduced.
Anyway, CPN and consultant visited mum last week (she had no recollection of visit). CPN shocked at mum's weight loss and consultant feels that there has been a sudden deterioration in her AD; more damage to the frontal lobe. I'm gutted. Of course, I realised that there's no good way out of all this, but to be told is something else, isn't it? It's that stomach dropping feeling I hate. As a result of the deterioration, they are reducing her tablets and, I guess, ultimately she'll come off them. For anyone interested, she's been on Exelon for about 14 months. They're also keen (but mum isn't) to get her into day care at least one day a week so that she has some interaction with others and to make sure she's eating properly ... but like some of you know, when day care is mentioned it's a big no! no!
One positive thing: if you can call it that is that on the consultant's advice I've been told to register the EPA. As some of you are aware, I've prevaricated with this (as have a lot of us!) and I did come to a half way house agreement with mum and the bank to enable her some independence. However, it seems now that things are moving swiftly downhill. I'm glad that I've had, what I can only term as an 'official' nod, if you know what I mean to register the EPA. From a purely selfish point of view it avoided me making the final decision. It's not going to be easy to try and discuss the ramifications with mum or to manage the fall out! I know that up to a point mum won't understand, but I will and it hurts. However, needs must when the devil drives, and he's certainly in charge at the moment.
Just wanted to get this off my chest. Know a lot of you have been here and that others are also in the same boat. (And there's me worrying about whether I should do it before the LPA deadline of October!)
Thanks for listening. Am off chocolate at the mo, but sod it, think I'll go and get a family size bar of fruit and nut.
Had a conversation with mum's CPN today that knocked me for six, although she only articulated what I realised yesterday when I had a message to say mum's tabs were being reduced.
Anyway, CPN and consultant visited mum last week (she had no recollection of visit). CPN shocked at mum's weight loss and consultant feels that there has been a sudden deterioration in her AD; more damage to the frontal lobe. I'm gutted. Of course, I realised that there's no good way out of all this, but to be told is something else, isn't it? It's that stomach dropping feeling I hate. As a result of the deterioration, they are reducing her tablets and, I guess, ultimately she'll come off them. For anyone interested, she's been on Exelon for about 14 months. They're also keen (but mum isn't) to get her into day care at least one day a week so that she has some interaction with others and to make sure she's eating properly ... but like some of you know, when day care is mentioned it's a big no! no!
One positive thing: if you can call it that is that on the consultant's advice I've been told to register the EPA. As some of you are aware, I've prevaricated with this (as have a lot of us!) and I did come to a half way house agreement with mum and the bank to enable her some independence. However, it seems now that things are moving swiftly downhill. I'm glad that I've had, what I can only term as an 'official' nod, if you know what I mean to register the EPA. From a purely selfish point of view it avoided me making the final decision. It's not going to be easy to try and discuss the ramifications with mum or to manage the fall out! I know that up to a point mum won't understand, but I will and it hurts. However, needs must when the devil drives, and he's certainly in charge at the moment.
Just wanted to get this off my chest. Know a lot of you have been here and that others are also in the same boat. (And there's me worrying about whether I should do it before the LPA deadline of October!)
Thanks for listening. Am off chocolate at the mo, but sod it, think I'll go and get a family size bar of fruit and nut.