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28 and caring for Mum (57) with early onset Alzheimer’s

Saz_CaringForMum

Registered User
Nov 8, 2020
10
0
I joined back in December and really haven’t utilised this forum but I recently I have been feeling overwhelmed with the amount of responsibility resting with caring for my Mum.

Our case is ‘tricky’ because my Mum’s Power of Attorney’s are family who live in the Republic of Ireland and cut contact from us back in January of 2020. I have had to reach out to local legal authorities based on the recommendation of social services. They completed a capacity test and Mum is ‘on the cusp’ of not having capacity.

I’m frustrated because I helped set Mum up with care; financial support & raised awareness of her case in the Republic of Ireland for the 2.5yrs she was there.

It feels like I’m starting from scratch in the U.K. & the law is different here - so all the research I did to best support my Mum doesn’t always count.

I feel very alone having moved out of London to Newcastle (where my boyfriend is from & where we could afford a much larger rental to have Mum live with us). I’m not sure if it’s Covid that’s had an affect, too - but in Ireland the local support was phenomenal.

Tonight I reached out to Dementia U.K. to see if I could get access to a Dementia Adviser or Admiral Nurse.

I would also love to connect with people in a similar situation to myself, being in my twenties and caring for someone with early onset Alzheimer’s is not easy but I do not regret it because my Mum is so much happier & I am getting to share so many special memories with her.
 

Shedrech

Volunteer Moderator
Dec 15, 2012
10,760
0
Yorkshire
I was going to suggest that you contact the Support Line @Saz_CaringForMum as yours is a particular issue, but see that you have contacted Admiral Nurses
maybe still give them a call as the advisors have a lot of knowledge to legal topics

I hope you find a way of getting the help your mum needs ... she's fortunate to have you looking out for her
 

Saz_CaringForMum

Registered User
Nov 8, 2020
10
0
Thank you @Shedrech - I heard back from the Admiral Nurses & referred to the local office. Hoping to see if we can get their support /if we need a referral from them tomorrow morning.
 

LouJT

New member
Aug 12, 2020
9
0
Hi there, I’m 33 and my mum has Alzheimer’s she’s just turned 60, and was diagnosed at 57. Can’t help with the legal side. But also find the caring side a challenge. 😊
 

Saz_CaringForMum

Registered User
Nov 8, 2020
10
0
Hi @silkiest we actually managed to get this completed with her and received confirmation it was received. It’s just a longer process with Covid unfortunately.

@LouJT - have you had any luck with care? I’ve recently been looking into getting a PA for my Mum. I’d never considered it before but unfortunately my Mum’s started having epileptic style seizures and her care needs are increasing.
PeoplePlus offer services to support you with hiring a PA if you’re still struggling.
 

Andy O

New member
Aug 19, 2021
3
0
Hi Saz I just wanted to make contact with you. My wife has early onset dementia ..she first showed signs when she was about 57. I live in Ponteland near Newcastle and I guess we may be in a similar position for supporting eachother with advice for local support. Hope you are doing ok.
 

Cazcaz

Registered User
Apr 3, 2021
160
0
@Saz_CaringForMum I’ve only just found your post. I hope things are going well for you.

I am in my early 40s, caring for (and living with) my mum who has Alzheimer’s. It really can be tough!

Do you work? Get carers allowance/credit? I am just starting this journey.