11 days no fluids or food or meds

Discussion in 'End of life care' started by flower1, Jul 13, 2015.

  1. Quilty

    Quilty Registered User

    Aug 28, 2014
    Sorry that I missed your post when you made it. Im so sorry you lost your Mum. It sounds like a peaceful passing after you both endured so much. It might be too late, but this is a poem I found that I would use for my own Mums funeral. It described our journey through dementia. I hope it brings you some comfort in the days ahead. You were her everything and we salute you.

    by Brenda Houck

    Do not ask me to remember
    Don’t try to make me understand
    Let me rest and know you’re with me
    Kiss my cheek and hold my hand.

    I’m confused beyond your concept
    I am sad and sick and lost
    All I know is that I need you
    To be with me at all cost.

    Do not lose your patience with me
    Do not scold or curse or cry
    I can’t help the way I’m acting
    Can’t be different though I try.

    Just remember that I need you
    That the best of me is gone
    Please don’t fail to stand beside me
    Love me until my life is done.

    I didn’t ask for this affliction,
    I didn’t want this day to come
    Though I sensed my soul was leaving
    As my body began to roam

    Hold me when I start to tremble,
    When I stare away so far.
    Only you can bring me comfort,
    Though I may not know who you are.

    When my life is over
    And your normal days return
    Know how much I loved you
    And how much you really learned.

    About life and death and sickness
    And the pain that each can bring
    Know you were my angel,
    You were my everything.
  2. flower1

    flower1 Registered User

    Apr 12, 2013
    Thank you to everyone for your kind messages and words of support during this sad time. My Mum was laid to rest with my father yesterday, it was a beautiful send off and it will stay in my heart forever. I am so grateful for the support that I have been given on this website over the past years, sometimes on those days when you feel there was nobody to speak to, but there was somebody to link to on here. The days where the tears just rolled down my face but could be consoled by the helpful advice given on here. I hope to gain strength from the passing of my beloved mum and in time be able to heal and give support back to those who may be going through the same. God Bless xx
  3. Gigglemore

    Gigglemore Registered User

    Oct 18, 2013
    British Isles
    So glad that your Mum had a beautiful send off. Now you have done all you can for her, hope you are managing to get some rest. Take care.
  4. Long-Suffering

    Long-Suffering Registered User

    Jul 6, 2015
    So sorry to hear of your loss, Flower.

  5. submarine

    submarine Registered User

    Apr 5, 2013
    So many mixed emotions .
    You must be exhausted.
    I hope you are managing to get some rest and support to get your batteries recharged.
    This thread has had me in tears.
    I'm so sorry for your loss.


    Sent from my iPad using Talking Point
  6. Ciarabillie24

    Ciarabillie24 New member

    Nov 28, 2018
    Hi Flower1, i know this post was made a few years back now and you probably havent used this for a while but i just wanted to say that we are currently going through the same that you went through almost identical stories and as i was feeling so down and upset yesterday after a long CHC meeting and the fact my nan (my 2nd mom) is deterioting now and struggling to fight off the chest infections, pneumonia and the aspiration i stumbled upon your posts. I hope you have found some peace now and are living your life knowing that you did everything possible for your mom she would be proud of you. Alot of families just leave their relative to waste away on their own ive seen it with my own eyes and cant believe people can be so cruel. I just wanted to let you know even after all these years that your posts have helped me alot. We are currently into the 3rd year which feels like a never ending battle but i will keep fighting for my nan and make sure she is cared for and respected until this nightmare ends for her and my family. People think that because she has dementia you are prepared but im not, i know my heart will break into pieces the day she goes :( Dementia not only affects the person but also the family and i know myself il never be the person i was before, it changes you and life will never be the same again x

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.