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  1. #1
    Registered User Norrms's Avatar
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    Seems so long ago

    Seems So Long Ago

    As we turned the corner on the country road towards the garden centre, I put the radio on. Just starting to play was Mr Beau Jangles, one of my favorites. As I listened to how he had it all, how he sang and danced, and how, even now when all was lost he could still hear the crowd asking him to do more, I felt deflated as I realised how much we had in common.

    My mind raced back as fast as light to a time where I would run into the disco, straight up to the DJ and ask for my favorite track (Whatever it was at the time) I remember dancing away until my feet hurt, only stopping for light refreshment and to wipe my brow. I had forgotten how much I used to love to dance, how free I felt as I expressed myself in a way only I could!! (there`s a clue there and how the youthful blood used to run through my body as I jived, bopped and Strutted my stuff to the tunes of the Top Twenty of the day !!

    Then I came back to earth with a THUD!! I remembered my illness of Dementia and my inability to remember most things, how it had stopped me from expressing myself, how it had stopped me being independent and going out to work to provide for my family as I had done for so many years. As I looked down at my hands they where white! Not because I was so cold but because I had clenched my fists so tight and was so frustrated!!! Where has it all gone?? WHY ME WHY ME? Screamed through my head time after time, the noise in my head sounded like a platoon of marching soldiers as my blood pressure rose and just as I felt I was going to scream, we reached the top of the hill, and the view in front of me was ???

    OUTSTANDING!!!\

    I was looking up, towards Dartmoor, the rolling hills bathed in winter sunshine and yet tufts of snow were still visible right on the top of the highest hill. All around seemed so calm and surreal, and as I watched as the clouds cast it shadows across the moors only to be replaced by more rays of sunshine, as it did, I began to understand.
    Those dark clouds I had just seen casting their ugly shadows across the lush green fields are just the same as the mood that had just passed through my body and mind, only to be replaced by the warmth and brightness of the sun that breathed new life into my body and hope in my heart.

    “We cannot bring the past back my friends, but we can bring the future forward”

    Norman Mc Namara (diagnosed with dementia 9 years ago aged just 50yrs old xxxxxxxxxxxxxxxxxxxx
    Please share if you wish
    What do you mean i have Alzheimer`s? IVE BEEN DIETING FOR GODS SAKE !!

  2. #2
    Registered User Jancis's Avatar
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    Norrms, this blog post is over 4 years old. You have posted it on lots of social media groups. If you re-post old news, you should say that this was a day in your life back in whatever year. This will help people understand the progression of your illness better. Most people reading this post would think you are talking about the present day. Just an observation as I've noticed quite a few reposts popping up.

    I love Bojangles too.
    "The best of life is further on, hidden from our eye beyond the hills of time" - Sir William Mulock.

  3. #3
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    Whatever technology has done to your posts and whenever this was originally posted Norrms, I do hope that you still have dance now and then!

  4. #4
    Registered User Norrms's Avatar
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    Yes i do Hillbilly, sometimes i cannot write what i want to so i refer to my old writings to help me remember, looks like it helps Jancis as well, so pleased, no need for dates and times, just want to share my memories, thanks all xxxxxxxxxxxxx
    What do you mean i have Alzheimer`s? IVE BEEN DIETING FOR GODS SAKE !!

  5. #5
    Registered User Jancis's Avatar
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    Quote Originally Posted by Norrms View Post
    looks like it helps Jancis as well, so pleased, no need for dates and times, just want to share my memories, thanks all xxxxxxxxxxxxx
    Sorry Norrms, you are not helping me personally.

    I think it would be more helpful Norrms if you could make it clear when you are reposting old memories. Communication is so difficult on the internet and things can easily get misconstrued. Your posts are often very emotional and it would be sad if people thought you had just been through something when in fact it was an experience from a few years ago. We all care so much or we wouldn't be here to try and give advice and support oneanother when they are in need. I hope you understand where I'm coming from.
    "The best of life is further on, hidden from our eye beyond the hills of time" - Sir William Mulock.

  6. #6
    Registered User Norrms's Avatar
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    I am so sorry Jancis if i am not helping you with this, and if ever i can help in any way please just ask. I will continue to post my posts as i see fit my friend as many on here wasnt on when i first joined years ago and by sharing posts (or old ) posts 4 years on as you say) i will be hopefully helping those who havent seen it .
    I have to ask ?

    1. How did you know its 4years old ? (I didnt )

    2. Did you trawl through old posts to find out

    3. If so, may i ask why and for how long ???

    4. And so sorry about this, but, have you nothing else better to do ROLF ROLF ROLF , i am sure you have xxxxxxxxxxxxx
    What do you mean i have Alzheimer`s? IVE BEEN DIETING FOR GODS SAKE !!

  7. #7
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    It really doesn't matter how old the post,or how often you post the same words,I always like to read your threads Norrms. You have dementia sadly,so obviously may repeat something,no one can surely have a problem with that!!

    Carry on being you,I have learnt a great deal from you,and hope to carry on learning.

    Sending love and hugs to you and Elaine.xx

  8. #8
    Registered User Norrms's Avatar
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    Thank you Kassy for your kind words, . as you know my point is i have dementia myself, in this day and age where we are told not to contradict if at all possible and go with the flow, and also i have posted it in a (I have dementia) Dementia page where things like this will quite obviously happen ?? Seems so very strange, someone i dont even know, would try and tell me what to do or not do ??

    Anyway it takes all sorts and i have previously stated will always be here to help JanCis if they want me too, hope you are well Kassy xxxx
    What do you mean i have Alzheimer`s? IVE BEEN DIETING FOR GODS SAKE !!

  9. #9
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    Thanks Norrms,I'm okay.

    Sadly my dear friend is showing signs of dementia,she phones me,and gets upset that she thinks she's telling me the same things over and over again,but I keep saying,even if she is,it really doesn't matter. She needs someone to talk too,and that's ok with me.

  10. #10
    Registered User Jancis's Avatar
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    Quote Originally Posted by Norrms View Post
    I am so sorry Jancis if i am not helping you with this, and if ever i can help in any way please just ask. I will continue to post my posts as i see fit my friend as many on here wasnt on when i first joined years ago and by sharing posts (or old ) posts 4 years on as you say) i will be hopefully helping those who havent seen it .
    I have to ask ?

    1. How did you know its 4years old ? (I didnt )

    2. Did you trawl through old posts to find out

    3. If so, may i ask why and for how long ???

    4. And so sorry about this, but, have you nothing else better to do ROLF ROLF ROLF , i am sure you have xxxxxxxxxxxxx
    I have always been interested in your case history Norrms. I saw the “Beau Jangles” post and remembered it because the song is one of my favourites - especially by Nina Simone. You originally posted same in Jan 2013 on your blog and internet search took no more than 2 minutes. You signed it then Norman Mc Namara 2013 (diagnosed with dementia five years ago aged just 50yrs old xxxxxxxxxxxxxxxxxxxx

    I do think that it’s more helpful to tell your story within the context of a timeline. I’m not telling you what to do just suggesting a more helpful way to communicate with your global friends.
    "The best of life is further on, hidden from our eye beyond the hills of time" - Sir William Mulock.

  11. #11
    Administrator Mark_W's Avatar
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    Hello as conversation in this thread has run it's course and was heading in an unconstructive direction we've taken the decision to close this thread.

    Thanks
    Mark
    Online Community Coordinator


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