BUT ? WHAT ABOUT THE CARER`S / CAREGIVERS ??
A VIEW FROM BOTH SIDES
I sat there this morning, totally transfixed and immersed in what Elaine (my wife ) was telling me this morning about last nights happenings. I listened in horror as she told me how i was throwing my arms about , kicking and screaming like a man possessed, and how she had to restrain me , got hold of my hands and held me tight, at one point accidentally pulling my thumb back which is what brought me out of it, thank goodness. ( i have to say even if she had done it on purpose in wouldn't have blamed her as she is always in danger when his happens) but worse was yet to come............
Within a couple of hours of settling back down, she says, at 2.30am i was running around the house, chasing people and shouting at them to get out!! I was kicking and punching at the air as if i was attacking hoards of people around me. It was so surreal listening to this as it was as if she was telling me about a film she had just watched, and not something that happened in real life. I looked at her as she explained it all to me, and i saw something i had`nt seen too many times before, i saw the fear in her eyes, the worry lines on her face, the tiredness in her movements and heard the sorrow in her voice, and then i thought?
" This conversation must be happening / have happened millions of times all over the world ?
BUT WHAT ABOUT ALL THE CARER`s /CAREGIVERS ??
What about YOU GUYS ?? the ones who has to deal with this day in day out ?
The ones who have to clean up the mess afterwards?
The ones who still have to carry on every day, without sufficient sleep ? Without help ? without Support ?
What happens to YOU when YOU ARE tired, worn out and at your wits end?
WHO LOOKS AFTER YOU ??
My dearest friends, i have no answer as to why you dont get the recognition you all so dearly deserve,
I have no idea why there isn't enough put in place for the support you so desperately need,
I have no idea why other people cannot understand why you do what you do ?? If the shoe was on the other foot i would do the same in a HEARTBEAT !!
BUT !! What i do know is others, just like myself, *(And not JUST those with dementia , but ALL Disabled dependents)
WE WILL BE FOREVER IN YOUR DEBT
You will be FOREVER LOVED
And you will NEVER BE FORGOTTEN !!!
"Always in your shadow, but shining just as bright right next to you "
Norrms Mc Namara
Diagnosed with dementia aged just 50, now 59 years old
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