First to start off, my mother now (61) has FTD dementia, and is in hospital with pneumonia. generally these 2 factors mean the end.
My father was told we could have a peg tube, but he presisted in feeding her orally and eventually she got pneumonia and now they will not even consider the PEG.
myself i have worked in clinical trials and have a background in pharmacology and also stem cells. It has been really difficult to conduct research as i know most papers only publish the findings of what they want to or if it is a company publication they will not reveal much information.
it really kills me, because i know if i had dementia my mother would find a cure with in a day.
i wanted to explore enbrel - i have mentioned this to drs before but there is no evidence for it despite tobinicks website and i cant seem to find a reliable review for his suggested treatment.
my mother - she was a keen learner, very spiritual, a keen reader, obsessed about her children, a real smother and worrier, but also wanted us - her kids to be strong and clever.
so with such a bright mind how could she get dementia ?!
I predict that when she is discharged from hospital it will be a matter of days.
my father had persuaded the palliative team sent to our house that my mother was getting better and they stopped calling him.
but now we will need to involve them again.
for me i feel deceived by drs and people involved in my mothers case- if they told me before dementia + pneumonia = end that would have been better to know.
Does anyone have an emergency last minute treatment suggestion that might save parts of her brain ?
i still feel she has a internal monologue- but i also know when she looks at me she is feeling bad from inside and wants to go, i also feel that sometimes when we are doing something she wants to be involved.
she cant talk, communicate in any way- eg blink or move arms, etc,,
anyone have any suggestions?